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Diving into the Genetics of Sickle Cell Disease

NNPA NEWSWIRE — Research indicates that as many as 3 million Americans carry the sickle cell trait, primarily impacting African Americans. In fact, nearly 1 in 12 African Americans have the sickle cell trait.

Published

7 years ago

January 10, 2019

Oakland Post

The “Ask Dr. Kevin” series is brought to you by Pfizer Rare Disease in collaboration with the National Newspaper Publishers Association (NNPA) to increase understanding of sickle cell disease.

Dr. Kevin Williams is the Chief Medical Officer for Rare Disease at Pfizer. He pursued medicine after being inspired by his father’s work as a general practitioner in his hometown of Baton Rouge, Louisiana. Dr. Kevin is passionate about raising awareness and increasing understanding of rare diseases, such as sickle cell disease, in the African American community.

In recent years, genetics has become a hot topic in popular culture, frequently making news headlines and serving as a key theme in movies and TV shows—and for good reason: our genes are what make us unique.

Genes not only help to shape our tastes and preferences, but they also can influence our health. In some cases, our genes play silent roles within our bodies. In others, genes take on a more prominent role, even determining our likelihood of having specific diseases.

This brings me to sickle cell disease (SCD), a topic I am passionate about and have discussed in previous articles. In this article, I’d like to focus on the often under-recognized fact that SCD is a genetic disease and is inherited from the passing of the sickle cell gene from parent to child.

Not everyone who inherits the sickle cell gene has SCD. Only people who inherit the gene from both parents develop this condition. This is an important distinction, as a person who inherits the sickle cell gene from only one parent while inheriting a normal gene from the other will have sickle cell trait, and typically will live a relatively normal life. However, people with sickle cell trait have a 50% chance of passing the gene to their children.[1]

I’m here to answer some of the most common questions that I’m asked about the sickle cell trait and suggest available resources for additional information.

How prevalent is the sickle cell trait?

Research indicates that as many as 3 million Americans carry the sickle cell trait, primarily impacting African Americans. In fact, nearly 1 in 12 African Americans have the sickle cell trait.¹

Worldwide, more than 100 million people carry the sickle cell trait.[2] It is most prevalent among sub-Saharan Africans, Hispanics, South Asians, Caucasians from southern Europe, and people from the Middle East.¹

Are there complications with having the sickle cell trait?

The majority of people who carry the sickle cell trait do not experience complications. However, that is not to say that everyone with the trait remains symptom-free. Though rare, extreme conditions such as severe dehydration, high-intensity physical activity, and low oxygen environments (e.g.: high-altitude locations) can lead to serious health issues or even sudden death for individuals with the sickle cell trait.¹

How do you know if you have the sickle cell trait?

All it takes is a simple blood test to learn if you have the sickle cell trait. You can talk with your doctor or a health clinic about getting the test.

In the US, all newborns are screened for the sickle cell trait before they leave the hospital. The results are usually available at the child’s one-month appointment. I strongly encourage older children and adults who weren’t tested as newborns to consider getting the test.

Why is it important to know your sickle cell trait status?

Getting screened is extremely important. If you know you have the trait, you will be more likely to take precautions to avoid those extreme conditions I mentioned earlier, like severe dehydration, high-intensity physical activity, and low-oxygen environments (eg, high-altitude locations), which could potentially trigger the onset of symptoms.¹

For those considering having children, consulting a genetic counselor, who can help them better understand what it means to be a carrier of the gene and the chances of having a child with SCD or the trait, should be considered.

It is important for everyone, particularly African Americans, to know their status. I always say that knowledge is power when it comes to your health.

Where can you go to learn more?

I encourage you to speak with your doctor about any concerns related to SCD and the sickle cell trait. There are also great resources out there to learn more: Head to com to find information and advice for patients and caregivers, search for healthcare professionals, and access community support and other resources.
Review the US Centers for Disease Control and Prevention’s “Get Screened to Know Your Sickle Cell Status” to learn more about sickle cell testing.
Contact national and/or local advocacy groups to learn more about genetic screenings that are offered in your area.

About Dr. Kevin Williams

Dr. Kevin Williams is the Chief Medical Officer (CMO) for Pfizer Rare Disease. In this role, he leads a Medical Affairs organization of approximately 150 medical colleagues around the globe supporting Pfizer’s efforts and portfolio in Rare Disease. Dr. Kevin joined Pfizer in January 2004 as a Director of Regional Medical & Research Specialist working in the HIV disease area. After moving into a Team Leader position in July 2005, he served in various leadership roles during his career at Pfizer. Dr. Kevin moved into his current Rare Disease CMO position in May 2016.

Dr. Kevin received his medical degree from the UCLA School of Medicine and is board certified in Internal Medicine. Following a 2-year fellowship in Health Services Research at UCLA and a brief academic career as an Instructor of Medicine at the UCLA School of Medicine, he spent 8 years in private practice caring for HIV-positive patients while maintaining an academic appointment at the UCLA School of Medicine as an Assistant Clinical Professor of Medicine. In addition to his medical degree, Dr. Kevin has a Masters in Public Health from the UCLA School of Public Health and a Juris Doctorate from Harvard Law School.

Keep up to date on Pfizer’s SCD efforts by visiting our page here. You can also follow Pfizer on Facebook and Twitter.

[1] Centers for Disease Control and Prevention. What you should know about sickle cell trait. https://www.cdc.gov/ncbddd/sicklecell/documents/SCD%20factsheet_Sickle%20Cell%20Trait.pdf. Accessed November 13, 2018.

[2] American Society of Hematology. Sickle cell trait. http://www.hematology.org/Patients/Anemia/Sickle-Cell-Trait.aspx. Published September 8, 2017. Accessed November 18, 2018.

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Poll Shows Support for Policies That Help Families Afford Child Care

BLACKPRESSUSA NEWSWIRE — New national polling shows persistent voter concern about the affordability and availability of child care for working parents, alongside broad support across key demographic groups for federal child care policies that help families afford care.

Published

2 days ago

March 2, 2026

Oakland Post

By First Five Years Fund

New national polling shows persistent voter concern about the affordability and availability of child care for working parents, alongside broad support across key demographic groups for federal child care policies that help families afford care.

The national survey was conducted by UpOne Insight on behalf of the First Five Years Fund from January 13–18, 2026.

Key findings include:

• Parents need help: 80% of voters say the ability of working parents to find and afford child care is either in a state of crisis or a major problem.

• This is an affordability issue: 82% believe federal child care funding will help lower costs for working families — including 69% of Republicans, 84% of Independents, and 94% of Democrats.

• And there continues to be strong support (62%) for the Child Care and Development Block Grant (CCDBG), a federal program that makes it possible for hundreds of thousands of families to afford safe, quality care for their children while parents work or go to school, including a majority of Republicans, 63% of Independents and 72% of Democrats.

• Support for funding child care programs remains strong: 75% believe child care funding should be increased or kept at current levels — including 75% of Republicans, 85% of Independents, and 97% of Democrats.

• 74% say funding for child care is an important and good use of tax dollars, including a majority of Republicans, three-quarters of Independents, and nine in ten Democrats.

FFYF Executive Director Sarah Rittling said, “Voters across the country are sending a clear message: federal child care and early learning programs work. These investments help parents stay in the workforce, strengthen families, and support healthy child development. They have also long had strong bipartisan support in Congress. At a time when affordability is top of mind for families, continued federal funding is essential to ensure child care remains accessible and within reach.”

First Five Years Fund works to protect, prioritize, and build bipartisan support for quality child care and early learning programs at the federal level. Reliable, affordable, and high-quality early learning and child care can be transformative, not only enhancing a child’s prospects for a brighter future but also bolstering working parents and fostering economic stability nationwide.

We work with Congress and the Administration to identify federal solutions that work for families with young children, as well as states and communities. We work with policymakers to identify ways to increase access to affordable, high-quality child care and early learning programs for children. And we collaborate with advocacy groups to help align best practices with the best possible policies. http://www.ffyf.org

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Trump’s MAGA Allies are Creating Executive Order Plan to Steal the 2026 Midterms

NNPA NEWSWIRE — The document that could lead to an executive order proposes using the claim that China interfered with the 2020 elections as grounds to “declare a national emergency.” The move would be an unprecedented step that would grant Trump new authority over the voting systems in the U.S.

Published

5 days ago

February 27, 2026

Oakland Post

By Lauren Victoria Burke, NNPA Newswire Correspondent

A group of MAGA pro-Trump activists, who say they are working in coordination with the White House, are circulating a 17-page draft executive order that would claim without evidence that China interfered with the 2020 presidential election. Donald Trump lost the 2020 presidential to President Joe Biden by over 7 million votes. Since Trump lost to Biden in 2020, he has repeatedly claimed that the election was “stolen” without evidence. The report of a group of “Trump allies” preparing an executive order to give Trump power over elections was first reported by The Washington Post.

The lies around the right-wing campaign that pushed falsehoods that the 2020 election was stolen was trafficked through right-wing media, particularly Fox News. Fox News was then sued for defamation for the claims by Dominion Voting Systems. Fox lost the case and had to settle for the largest defamation amount on record of $787.5 million in April 2023.

The document that could lead to an executive order proposes using the claim that China interfered with the 2020 elections as grounds to “declare a national emergency.” The move would be an unprecedented step that would grant Trump new authority over the voting systems in the U.S.

The story in The Washington Post arrives as Trump increasingly signals that he may take actions that would alter the result of the 2026 midterms. The Republicans are widely expected to lose as their approval ratings plummet as a result of a failing economy under Trump. Over 50 members of Congress have announced they will retire this year and not return in 2027.

The Trump Department of Justice, which now has a large image of Trump on the side of it, “sued five new states Thursday [Feb. 26, 2026] demanding access to their unredacted voter rolls — escalating a campaign that has been rejected by multiple federal courts and faces resistance from Republican-led states as well,” according to Democracy Docket, a group that works to protect voting rights.

Trump claimed back in late 2020, the last year of his first term, that he had the authority to issue an executive order related to mail-in voting for the 2020 elections — which he would then lose. But the Constitution states that control of elections lies with the states. As the GOP works to place hurdles in front of voting, Democrats worked to make voting easier.

In March 2021, President Biden signed an executive order calling on federal agencies to expand voting access as part of the Biden Administration’s effort “to promote and defend the right to vote for all Americans who are legally entitled to participate in elections.”

Trump’s focus is clearly on altering the November 2026 midterm elections. Trump’s polling numbers and the elections and special elections that have taken place around the U.S. over the last year clearly indicate that Republicans are about to be hit by a blue wave of Democratic victories.

Lauren Victoria Burke is an independent investigative journalist and the founder of Black Virginia News. She is a political analyst who appears on #RolandMartinUnfiltered and hosts the show LAUREN LIVE on YouTube @LaurenVictoriaBurke. She can be contacted at LBurke007@gmail.com and on twitter at @LVBurke

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PRESS ROOM: NBA Hall of Fame Nominee Terry Cummings Joins 100 Black Men of DeKalb County to Launch Victory & Values Initiative

NNPA NEWSWIRE — NBA Hall of Fame nominee and Basketball Legend Terry Cummings was administered the official member’s oath and ceremonially pinned during a special induction ceremony held on Friday, February 20th.

Published

5 days ago

February 27, 2026

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Cummings becomes an honorary member, joining other role model sports stars

NBA Hall of Fame nominee and Basketball Legend Terry Cummings has officially become an honorary member of the 100 Black Men of DeKalb County, marking a powerful new chapter for the 100 Black Men and youth development across the region.

Cummings was administered the official member’s oath and ceremonially pinned during a special induction ceremony held on Friday, February 20th. The moment signified more than membership — it marked the launch of the organization’s transformative new platform, the Victory & Values Initiative.

The Victory & Values Initiative is a groundbreaking youth development program designed to empower elementary and middle school students through a dynamic blend of sports, mentorship, and STEM exposure. The initiative focuses on building health, discipline, character, leadership, and access to opportunity — creating pathways for long-term academic and personal success.

“This is about more than sports,” said Cummings during the ceremony. “It’s about using the platform of athletics to teach life lessons, create access, and build the next generation of leaders.”

The induction ceremony also featured notable guests including NASCAR’s newest Star Driver, Lavar Scott and NASCAR Director of Athletic Performance, Phil Horton, who joined Cummings for a powerful Victory & Values Town Hall discussion. The Town Hall was moderated by renowned Sports Emcee John Hollins and focused on leadership, resilience, discipline, and the importance of mentorship in shaping young lives.

A “Day at NASCAR” for 75+ Youth

Cummings wasted no time getting to work. On his first full day as an honorary member, he joined his new brothers of the 100 Black Men of DeKalb County to host a “Day at NASCAR,” escorting more than 75 youth to a once-in-a-lifetime experience at EchoPark Motor Speedway (formerly Atlanta Motor Speedway).

The youth participants received behind-the-scenes access including: an exclusive tour of Pit Row, access to the Garage Area and exploration of the interactive Fan Zone.

The experience culminated with a surprise meet-and-greet and Q&A session with NASCAR Superstar Bubba Wallace, who shared insights on perseverance, preparation, and breaking barriers in professional sports.

The day served as a living example of the ‘Victory & Values’ Initiative in action — exposing youth to new industries, expanding their vision for the future, and connecting them directly with high- level mentors and role models.

Building Leaders Through Access and Mentorship

The 100 Black Men of DeKalb County – a chapter of the largest, national mentoring organization in the county – continues to expand its footprint with programs focused on academic excellence, economic empowerment, leadership development, and health & wellness.

The launch of ‘Victory & Values’ represents a strategic expansion of the organization’s impact

intentionally integrating athletics and STEM to engage youth at an early age while reinforcing core principles such as integrity, accountability, teamwork, and perseverance.

“Our mission has always been to mentor the next generation,” said Vaughn Irons, President-Elect of the 100 Black Men of DeKalb County. “With Terry Cummings joining the brotherhood, along with partners in NASCAR and professional sports, we are creating unprecedented access and exposure for our youth. Victory & Values is about turning inspiration into structured opportunity.”

By connecting elementary and middle school students to professional athletes, executives, STEM professionals, and community leaders, the initiative aims to:

Increase youth exposure to careers in sports business, engineering, and performance science
Strengthen mentorship pipelines
Promote physical wellness and mental resilience
Build character-driven leadership at an early age

Open Invitation to Youth and Families

All youth are invited to participate in the Victory & Values Initiative, along with the other countless, impactful programs offered by the 100 Black Men of DeKalb County.

Parents and guardians seeking mentorship, leadership development, academic enrichment, and transformative exposure opportunities for their children are encouraged to connect with the organization.

As NBA Legend Terry Cummings’ induction demonstrates, Victory & Values is more than a program — it is a movement designed to build champions in life, not just in sports.

For more information about the Victory & Values Initiative or to enroll a student, contact: 100 Black Men of DeKalb County at Phone at 404.241.1338, info@100bmod.org or Tee Foxx at 404.791.6525,