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Autism spectrum disorder situation highlights need for early diagnosis

SOUTH FLORIDA TIMES — Shaniel Miles is a mother of three children, and now an expert and advocate – by necessity – on autism.

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By Staff Report

MIAMI, Fla. – Shaniel Miles is a mother of three children, and now an expert and advocate – by necessity ¬– on autism. Three years ago, when Shaniel took her then 5-year-old son Geremy for his check-up she was told he was just fine, even though he wasn’t speaking much. “He’ll catch up,” the doctor told her. “Boys are just slower.”

Later that year, Geremy entered kindergarten. His teachers never complained about him, but they also never let Shaniel know that Geremy still wasn’t speaking or socializing with classmates. At the end of the school year, Geremy was held back.

“I thought it was so that he could mature a little bit more,” Shaniel said. “He understood what was going on. We just thought he didn’t like to talk much.”

A year later Geremy entered first grade. When Shaniel asked about Geremy’s progress, teachers told her that although he was well behaved, he didn’t participate in classroom activities or do classwork. She called for a meeting with his teachers, the principal, the school counselor, and school psychologist so she could understand her son’s situation better. Together they all came up with a plan to monitor him more. But when newly implemented daily reports came home, Shaneil got the same news over and over:

Geremy wasn’t doing any classwork and he wouldn’t speak to the teacher. The teachers didn’t offer up any explanation or any solutions.

Today, “One in 62 African American children in the U.S. has an autism spectrum disorder and those children are frequently misdiagnosed or diagnosed later than other children, which may result in longer and more intensive intervention,” says Dr. Michael Alessandri, executive director of the University of Miami – Nova Southeastern University Center for Autism and Related Disabilities (UM-NSU CARD).

In Geremy’s case, he was 7 years old, Alessandri noted. “His speech delay and tendency to avoid eye contact with adults were early indicators of an autism spectrum disorder. Research shows early identification and family support have long-term benefits for children with autism. Unfortunately, Geremy’s story is all too common.”

When teachers told his mother they didn’t have time to work with him individually, she said, “I decided there wasn’t any more time left to waste with the school’s bureaucracy, and I made an appointment with a private psychologist.”

After the psychologist spent a few sessions with Geremy, and his parents, he was diagnosed with autism spectrum disorder (ASD).

“We were shocked and didn’t know what to think” said Miles. “But at the same time, we were relieved, because the psychologist confirmed what we had suspected. Geremy wasn’t progressing like the other children and he needed help. It took almost two and a half years, to figure it out. But we were determined to help our child and committed to doing what’s necessary to get him all the help he needs to get back on track,” Shaniel explained.

Autism spectrum disorder is a neurological condition that affects the way the brain develops and processes information. It is characterized by impaired social interactions, problems with verbal and nonverbal communication, and unusual, repetitive, or severely limited activities and interests. It is considered a “spectrum” disorder because it varies widely in its specific behaviors and severity from one person to another. Some individuals present with such mild symptoms that the disorder may go largely unnoticed by others.

“Parents, educators and medical professionals all need to be aware of the common and varied indicators of a possible autism spectrum disorder,” Alessandri said. Some of those include:

• Not responding to their name by 12 months,
• Not pointing at objects to show interest such as toys or airplanes by 14 months,
• Not playing “pretend” games, such as pretending to “feed” a doll by 18 months,
• Having trouble understanding other people’s feelings or talking about their own feelings
• Repeating words or phrases over and over (echolalia)
• Giving unrelated answers to questions
• Getting upset by minor changes
• Having obsessive interests
• Flapping their hands, rocking their body, or spinning in circles
• Having unusual reactions to the way things sound, smell, taste, look or feel.

“When any of these signs present themselves, it’s always best to speak to a medical professional, and if you’re not comfortable with what your family doctor or pediatrician is telling you, get a second opinion,” said Alessandri. “Symptoms can also vary by age and developmental level, with younger individuals often displaying different symptoms than older individuals. In all cases, individuals with ASD or other related conditions can benefit from early and appropriate treatment.”

UM-NSU CARD has offices in Broward, Miami-Dade and Monroe Counties and can help families get a thorough evaluation and proper diagnosis. From there clients can be provided primary services including information, resources, medical referrals and support groups. Additionally, the state-financed program provides training and workshops for parents and educators, as well as public education and awareness activities.

“We want to create a community and provide the information, support, and strategies that help individuals with autism and their families succeed in all stages of life,” Alessandri said.

“We wish we’d known about them earlier in the process. It would have saved us a lot of time and frustration,” said Miles. “But now were on the right track and we know what’s possible for our son.”

Today, 8-year old Geremy is in second grade and attends a public school in MiamiDade County that has a specialized program for students with ASD along with specially trained teachers who understand his needs and potential.

“He’s thriving and is on the honor roll,” Miles said. “We are very proud of him.”

This article originally appeared the South Florida Times

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Bay Area

The Case Against Probate Part 2 – The Dr. Laura Dean Head Case

Zakiya Folami Jendayi says, “Dr. Laura Dean Head had two sisters but was estranged from them the entire 28 years we were friends.”Despite that fact, Head’s sisters, Della Hamlin and Helaine Head, questioned Head’s trust three times after Head transitioned, attempting to acquire Head’s estate, and three different attorneys told them they didn’t have standing. Dr. Head did not include either of her sisters in her trust or will. Dr. Head’s Trust included a disinheritance and no contest clause regarding her sisters.

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Dr. Laura Dean Head, right, and Zakiya Jendayi, left. Dr. Head was Jendayi's academic advisor, mentor, sorority sister and dear friend for 28 years. Courtesy photo.

By Tanya Dennis

Dr. Laura Dean Head, a Black Studies professor at San Francisco State University for 35 years, transitioned on June 19, 2013.  Aware of her imminent demise, Dr. Head appointed former student and friend for 28 years, Zakiya Folami Jendayi as trustee, executor, and sole beneficiary of her estate in front of several credible witnesses and a notary.  Head also gave Jendayi power of attorney and appointed Jendayi as her advanced healthcare agent.

Jendayi says, “Laura had two sisters but was estranged from them the entire 28 years we were friends.”Despite that fact, Head’s sisters, Della Hamlin and Helaine Head, questioned Head’s trust three times after Head transitioned, attempting to acquire Head’s estate, and three different attorneys told them they didn’t have standing. Dr. Head did not include either of her sisters in her trust or will. Dr. Head’s Trust included a disinheritance and no contest clause regarding her sisters.

In 2020, Dr. Head’s deceased mother’s abandoned property for over 20 years sold, entitling Head’s estate to one-third of the proceeds. Jendayi filed a petition for distribution rights on behalf of Dr. Head’s estate.  Head’s sisters responded, filing a lawsuit against Jendayi to invalidate Head’s trust, claiming Jendayi used undue influence and forgery, citing Head’s lack of capacity to make business decisions.

During trial, Della testified she had not seen Head since 1997 or 1998, and Helaine could not identify Dr. Head in a photo during her trial testimony. Head’s physician, Dr. Stephen Sarafian, wrote a letter and testified that Dr. Head lacked mental capacity, and her mental state rendered her unable to manage her own financial resources and/or to resist fraud or undue influence.

His letter had the wrong day, month, year and identified Dr. Head as a male. Jendayi filed a complaint against Sarafian with Kaiser’s grievance department and the Medical Board of California. Both agencies denounced Sarafian’s false letter.

When Jendayi subpoenaed Sarafian to testify a second time, Sarafian testified he had not performed a mental assessment on Dr. Head, had not diagnosed Dr. Head’s lack mental capacity, and had not determined if she could manage her own financial resources and/or resist fraud or undue influence,

During the 18-day trial, the sisters’ attorney, Daniel Leahy, stated that Jendayi named herself Head’s beneficiary. No one testified to that claim, nor was there any evidence. When Jendayi objected during the trial, Judge Sandra Bean stated, “it’s only argument.”

However, Bean accepted the “only argument” lie from Leahy, a court attorney who never met Dr. Head, over Dr. Head’s attorney, Elaine Lee, who testified that Dr. Head named Jendayi as her beneficiary after she met with Dr. Head privately. Bean ruled that Jendayi named herself beneficiary and unduly influenced Dr. Head.

Zendayi says “Trial transcripts show Bean’s extreme bias and discrimination against me, how Bean lawyered from the bench, abused her discretion, changed a witness testimony on the record and exhibited blatant racism.”

The Appellate Court upheld Bean’s ruling, They also ruled that Jendayi named herself beneficiary and relied on Sarafian’s invalid letter three times to uphold Bean’s ruling.

Jendayi then petitioned to the Supreme Court of California for justice, but the Court denied hearing her case. Jendayi is now headed to the Supreme Court of the United States seeking justice. Judge Bean has been contacted for comment, but thus far there has been no response.

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Activism

The Best Advice for Raising Children: Discipline That Makes Sense

In his book Developing Positive Self Images and Discipline in Black Children, Dr. Jawanza Kunjufu suggests that primary aims for socializing Black children should be: establishing goals related to God and the church; familiarizing children with religious texts like the Bible or Quran; educating them of Black culture like Khemetic (Egyptian) Civilization; enlightening them about Black leaders like Malcolm X and Sojourner Truth; and teaching them to strive to be employers, not employees.

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Headshot of Dr. William A. Thomas. Photo courtesy of Dr. William A. Thomas.
Headshot of Dr. William A. Thomas. Photo courtesy of Dr. William A. Thomas.

By William A. Thomas, Ph.D.

In many African societies, the primary aim of socialization is to raise children to be socially responsible and eventually provide economic support to their parents and extended families. Ghanaian philosopher Kwame Gyekye taught that children are raised to be respectful of the wishes of their parents and extended adult family members.

In his book Developing Positive Self Images and Discipline in Black Children, Dr. Jawanza Kunjufu suggests that primary aims for socializing Black children should be: establishing goals related to God and the church; familiarizing children with religious texts like the Bible or Quran; educating them of Black culture like Khemetic (Egyptian) Civilization; enlightening them about Black leaders like Malcolm X and Sojourner Truth; and teaching them to strive to be employers, not employees.

Effective disciplinary strategies appropriate to a child’s age and development teach them to regulate their behavior; keep them from harm; enhance their cognitive, social, and emotional executive functioning skills; and reinforce the behavioral patterns taught by their parents and caregivers.

Below are some specific guidelines for disciplining children.

Listen to what children are talking about with interest and show them you understand their feelings. Remember, children mirror and learn about their emotional selves by hearing their feelings reflected back to them. Staying on target also means avoiding labels. When children fail to do what is expected, discussing it is helpful rather than saying how stubborn, lazy, dumb, or bad they are. By the same token, more positive labels can be helpful.

Dependability is another essential component of the discipline process. When parents are dependable, their children learn what to expect and are helped to feel secure. When parents are consistent, children learn to trust, that is, predict their parents’ behaviors with certainty. A child thinks, “When I spill something, I will always be asked to wipe it up.” A child thinks, “If I use foul language, I will always be corrected.” A child thinks, “If I take something that doesn’t belong to me, I will always have to give it back.” The ability to predict with certainty leads children to rely on their parents and the village/community in which they live. Children feel safe when they know what to expect.

Conclusions

It takes a village/community to raise the divine gift that is the Black child. Parents look to therapists for guidance concerning a variety of parenting issues, including discipline. Keep in mind that evidence suggests that corporal punishment is both ineffective in the long term and associated with cognitive and mental health disorders. When parents want guidance about the use of spanking, a child therapist can explore parental feelings, help them better define the goals of discipline, and offer specific behavior management strategies. In addition to providing appropriate education to families, the Bay Area Association of Black Psychologists (Bay ABPsi) can refer them to community resources, like parenting groups and classes.

 About the Author

Dr. Thomas is a licensed clinical psychologist with a private practice in the SF/Oakland Bay Area and Beaumont. He is a member of Bay ABPsi, a healing resource committed to providing the Post Newspaper readership with monthly discussions about critical issues in Black Mental Health. Readers are welcome to join us at our monthly chapter meetings every 3rd Saturday via Zoom and contact us at bayareaabpsi@gmail.com.

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Activism

Report Offers Policies, Ideas to Improve the Workplace Experiences of Black Women in California

The “Invisible Labor, Visible Struggles: The Intersection of Race, Gender, and Workplace Equity for Black Women in California” report by the California Black Women’s Collective Empowerment Institute (CBWCEI), unveiled the findings of a December 2024 survey of 452 employed Black women across the Golden State. Three-fifths of the participants said they experienced racism or discrimination last year and 57% of the unfair treatment was related to incidents at work. 

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Shutterstock
Shutterstock

By McKenzie Jackson, California Black Media 

Backed by data, a report released last month details the numerous hurdles Black women in the Golden State must overcome to effectively contribute and succeed in the workplace.

The “Invisible Labor, Visible Struggles: The Intersection of Race, Gender, and Workplace Equity for Black Women in California” report by the California Black Women’s Collective Empowerment Institute (CBWCEI), unveiled the findings of a December 2024 survey of 452 employed Black women across the Golden State. Three-fifths of the participants said they experienced racism or discrimination last year and 57% of the unfair treatment was related to incidents at work.

CBWCEI President and CEO Kellie Todd Griffin said Black women have been the backbone of communities, industries, and movements but are still overlooked, underpaid, and undervalued at work.

“The data is clear,” she explained. “Systemic racism and sexism are not just historical injustices. They are active forces shaping the workplace experiences of Black women today. This report is a call to action. it demands intentional polices, corporate accountability, and systemic changes.”

The 16-page study, conducted by the public opinion research and strategic consulting firm EVITARUS, showcases the lived workplace experiences of Black women, many who say they are stuck in the crosshairs of discrimination based on gender and race which hinders their work opportunities, advancements, and aspirations, according to the report’s authors, Todd Griffin and CBWCEI researcher Dr. Sharon Uche.

“We wanted to look at how Black women are experiencing the workplace where there are systematic barriers,” Todd Griffin told the media during a press conference co-hosted by Ethnic Media Services and California Black Media. “This report is focused on the invisible labor struggles of Black women throughout California.”

The aspects of the workplace most important to Black women, according to those surveyed, are salary or wage, benefits, and job security.

However, only 21% of the survey’s respondents felt they had strong chances for career advancement into the executive or senior leadership ranks in California’s job market; 49% felt passed over, excluded from, or marginalized at work; and 48% felt their accomplishments at work were undervalued. Thirty-eight percent said they had been thought of as the stereotypical “angry Black woman” at work, and 42% said workplace racism or discrimination effected their physical or mental health.

“These sentiments play a factor in contributing to a workplace that is unsafe and not equitable for Black women in California,” the report reads.

Most Black women said providing for their families and personal fulfillment motivated them to show up to work daily, while 38% said they were dissatisfied in their current job with salary, supervisors, and work environment being the top sources of their discontent.

When asked if they agree or disagree with a statement about their workplace 58% of Black women said they feel supported at work, while 52% said their contributions are acknowledged. Forty-nine percent said they felt empowered.

Uche said Black women are paid $54,000 annually on average — including Black single mothers, who averaged $50,000 — while White men earn an average of $90,000 each year.

“More than half of Black families in California are led by single Black women,” said Uche, who added that the pay gap between Black women and White men isn’t forecasted to close until 2121.

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