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Endometriosis: More than Just Painful Cycles

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Chandelis marching with Team Virginia at the Endo march on Capitol Hill. (Photos by Jonathan Hunter)

Chandelis marching with Team Virginia at the Endo march on Capitol Hill. (Photos by Jonathan Hunter)

 

by Shantella Y. Sherman
Special to the NNPA from the Afro-American Newspaper

Cassandra Nivens has experienced painful periods since age 14. To cope with being mostly incapacitated for some time each month, Nivens learned to manage what she believed were normal hormonal shifts, often scheduling time away from school and work around a 28-day cycle. It wasn’t until a routine ultrasound during her first pregnancy that her painful periods were diagnosed as endometriosis.

Defined as a condition where tissue that normally grows inside the uterus grows outside of it, endometriosis impacts 176 million women. Each month as the lining of the uterus sheds and the blood and tissue is released, the same thing happens to the tissue outside the uterus. But with no way for the released tissues to leave the body, inflammation and scar tissue develop. While endometriosis affects White women 33 percent more often, deaths from undiagnosed endometrial cancer is roughly 80 percent higher among African-American women.

“I was relieved to be able to put a name to what felt like some type of torture I endured every month, but was scared and concerned for the health of my baby. My system felt out of whack because of the pregnancy, and I was afraid that after my son was born, my hormones would go into high-gear, and it would be even more painful,” said Nivens, who found some relief in breastfeeding her healthy child.

Once her cycle resumed, Nivens she sought treatment from a naturopath. After two years of progressive yoga (from BandhaKonasana poses to hot yoga), acupuncture, and change in diet, she and her husband were able to welcome a second son.

According to research from the Mayo Clinic, Nivens is among the fortunate able to conceive with endometriosis, as an estimated 30-40 percent of infertile women have endometriosis. Because the disorder can only be definitely diagnosed through visual inspection inside of the pelvis and abdomen (as well as tissue biopsy of the implants), even ultrasounds can only hint at its presence.

General symptoms of endometriosis include: extremely painful or disabling menstrual cramps; pain increasing in severity over time; chronic pelvic pain including lower back and pelvic pain; pain during or after sex; intestinal pain; painful bowel movements; or painful urination during menstrual periods.

As more women become aware that endometriosis is more than just painful periods, the hope among physicians is that more women will note their symptoms and seek professional advice.

The Howard University Department of Obstetrics and Gynecology recently served as local sponsors of the 2015 Worldwide EndoMarch for Endometriosis to raise awareness among African Americans. The second annual march took place at Upper Senate Park in Northwest, March 28, and simultaneously in more than 56 cities worldwide.

Chandelis Duster, a Virginia precinct manager of the EndoMarch diagnosed six years ago with the condition, took part in the march to help raise awareness. “It has been a rough six years during which I have had three surgeries. Initially there was a big cyst on an ovary that needed to be drained and that was how they found endometriosis. No one had ever talked to me about it and as a freshman in college, it was scary to be told I had a disease with no cure,” Duster said.

Following a laparoscopic surgery to remove the tissue, more endometriosis was found. “It’s been tough dealing with the pain constantly and everyday… a heating pad is [my] best friend. It has gotten better since the last surgery, but emotionally, it is a lot to deal with and it is a financial strain,” Duster said.

Among African-American women, endometriosis is one of the most common indications for major gynecological surgery and hysterectomy.

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Activism

A Student-Run Group Provides Critical Support Services to Underserved Residents

Those visiting The Suitcase Clinic can get legal advice, sign up for food assistance, receive housing resources, get medical help, or enjoy a hot, fresh meal. They can also get haircuts and foot washes from the student volunteers. Nilo Golchini, executive director of the clinic, said one of the goals for most of the students working there is helping bridge the gap of trust that exists between many unhoused people and the healthcare and social welfare systems.

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UC Berkeley Law Students help a clinic visitor with legal advice at their Tuesday night services. The Clinic offers a variety of resources, including medical, to those in the community who have little access to these services. Photo by Magaly Muñoz
UC Berkeley Law Students help a clinic visitor with legal advice at their Tuesday night services. The Clinic offers a variety of resources, including medical, to those in the community who have little access to these services. Photo by Magaly Muñoz

Part One

By Magaly Muñoz

Every Tuesday evening, the dining hall of First Presbyterian Church fills up with dozens of people eating, laughing and moving from table to table, receiving much-needed services from UC Berkeley students – just a few blocks away from the university’s campus.

Individuals seeking support services can be found in this multi-stationed room on the south end of the church talking to law students, student case managers, or receiving medical attention in a corner by healthcare professionals.

This weekly event is hosted by Cal students through a volunteer-run program called The Suitcase Clinic.

The clinic, founded in 1989, was intended to offer free resources to underserved communities in Berkeley and surrounding cities. The majority of the clinic’s clientele are unhoused or low-income people looking for extra support.

Those visiting the clinic can get legal advice, sign up for food assistance, receive housing resources, get medical help, or enjoy a hot, fresh meal. They can also get haircuts and foot washes from the student volunteers.

Nilo Golchini, executive director of the clinic, said one of the goals for most of the students working there is helping bridge the gap of trust that exists between many unhoused people and the healthcare and social welfare systems.

During their tenure in the program, many of the students say they become strong advocates for homelessness rights.

Visitors of the Suitcase Clinic can receive haircuts and foot washing by student volunteers every Tuesday evening. Photo by Magaly Muñoz.

Visitors of the Suitcase Clinic can receive haircuts and foot washing by student volunteers every Tuesday evening. Photo by Magaly Muñoz.

“We’re also standing in solidarity with them. So, it’s not saying, ‘I’m going to help you, but I’m also going to stand with you,’” Golchini said.

Student volunteers get extensive training prior to working directly with clients. Those interested have to take a semester-long class to become versed in areas such as outreach, intersectionality, how to interact with unhoused people, how to sign people up for social services. and more.

Volunteers then get to pick from three different clinics: General, Women’s, or Youth and LGBTQ+.

The General Clinic is the most popular among visiting residents, while Women’s and Youth/LQBTQ+ have more specialized services for attendees.

The Women’s Clinic has many of the similar services to General, but also includes nail painting, childcare, and massages.

The Youth and LGBTQ+ Clinic offers a safe space for young people navigating living on the streets, with services that include housing referrals, wellness and recreation classes and employment resources.

Golchini explained that it’s important for them to keep these clinics separate because the different demographics experience poverty and homelessness differently than those who visit the General Clinic.

Suitcase Clinic student workers posing for a photo with a frequent clinic attendee. The Clinic is open to Berkeley unhoused and low-income residents who need medical or legal service, or a hot meal. Photo by Magaly Muñoz.

Suitcase Clinic student workers posing for a photo with a frequent clinic attendee. The Clinic is open to Berkeley unhoused and low-income residents who need medical or legal service, or a hot meal. Photo by Magaly Muñoz.

“We’re able to provide spaces where people can come in and feel safe and not feel like they’re constantly worried that something’s going to happen to them,” she said.

An outreach team also visits encampments every other Saturday in the Berkeley area to provide hygiene kits and encourage people to visit the in-person clinic, if possible.

However, Golchini said engagement has been low for some time now due to a recent decision by the U.S. Supreme Court that allows cities to ban and cite people for sleeping on the streets.

She said a lot of their clientele got displaced to other cities over time, making it difficult to stay in contact with the services the Clinic was providing for them.

But that hasn’t slowed down the students at the Clinic, if anything, it has pushed them to do more for the community they serve.

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Activism

Delta Sigma Theta Alumnae Chapters Host World AIDS Day Event

With members from Berkeley Bay Area, Oakland East Bay (OEB) and Hayward Tri-City chapters present, the event opened with Oakland City Councilmember Treva Reid sharing data and legislation that has passed to address the safety, health, and well-being of Black women in the state of California. Attendees were able to learn directly from expert guest speakers, including Shimere Harrington from ViiV Healthcare, Barbara Green-Ajufo, an epidemiologist from UCSF Center for AIDS Prevention Studies (CAPS), and Dot Theodore, director of the HIV Care Program Division of Center for Disease Control and Prevention (CDC) for Alameda County.

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Petrina A. Perteet, Takija Gardner and Oakland City Councilmember Treva Reid at the World AIDS Day event on Dec. 1. Photo by Kevin Hicks.
Petrina A. Perteet, Takija Gardner and Oakland City Councilmember Treva Reid at the World AIDS Day event on Dec. 1. Photo by Kevin Hicks.

By Don-Neva E. Johnson and Petrina Alexander Perteet
Special to The Post

The International Awareness and Involvement (IA&I) committees of East Bay chapters of Delta Sigma Theta Inc. proudly hosted a successful World AIDS Day event on Dec.1, bringing together community members, healthcare professionals, and advocates to raise awareness and support the fight against HIV/AIDS.

With members from Berkeley Bay Area, Oakland East Bay (OEB) and Hayward Tri-City chapters present, the event opened with Oakland City Councilmember Treva Reid sharing data and legislation that has passed to address the safety, health, and well-being of Black women in the state of California.

Attendees were able to learn directly from expert guest speakers, including Shimere Harrington from ViiV Healthcare, Barbara Green-Ajufo, an epidemiologist from UCSF Center for AIDS Prevention Studies (CAPS), and Dot Theodore, director of the HIV Care Program Division of Center for Disease Control and Prevention (CDC) for Alameda County.

The speakers provided valuable insights into the current state of HIV/AIDS, advancements in treatment, and the importance of prevention and support.

L-R Petrina A. Perteet, Dr. Natalie Wilson, Don-Neva Johnson, Tracy Diop, Sonji Walker and Takija Gardner were part of the World AIDS Day event. Photo by Kevin Hicks.

L-R Petrina A. Perteet, Dr. Natalie Wilson, Don-Neva Johnson, Tracy Diop, Sonji Walker and Takija Gardner were part of the World AIDS Day event. Photo by Kevin Hicks.

“The outcome of this day is more than what we could have hoped for, and we are deeply grateful for the participation of our distinguished speakers and the support of our sponsors,” said Don-Neva Johnson and Tracy Diop, IA&I committee chairs for Berkeley Bay Area and Hayward Tri-City.

“Their contributions helped us create an informative and empowering event for our community,” said event organizer Dr. Natalie Wilson, associate professor of UCSF School of Nursing and IA&I committee chair.

Held at the Samuel Merritt Health Education Center at 400 Hawthorne Ave. in Oakland, the event was made possible by the generous support of sponsors ViiV healthcare, Gilead Sciences, and Good Health WINs. Attendees received gift bags and had the opportunity to engage with educational tables from Gilead, participate in a Q&A session with speakers led by Wilson.

Delta Sigma Theta Incorporated is an organization of college-educated women committed to the development of its members and offer public service with a primary focus on the Black community.  We are dedicated to empowering our communities through education, advocacy, and support around the world.

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Activism

Outgoing D.A. Pamela Price Releases Report on County Gun Violence Epidemic

The 84-page report is divided into two parts: the Public Health Impact of Violence and the Contribution of Structural Inequalities; and the Public Safety Impact of Gun Violence and the Regulation of Firearms. Each section documents trends in rising gun violence in the wake of the COVID-19 pandemic, with special attention to the rise in gun-related deaths of women and children in Alameda County. Each section advises innovative approaches for the County to address gun violence and build safe communities.

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Exclusive interview with County D.A. Price days before recall election. Photo by Ken Epstein.
Pamela Price was recalled in the election on Nov. 5. File photo.

By Post Staff

Criminal Justice Reformer District Attorney Pamela Price, who is leaving office this week after losing a recall election, released a comprehensive report on the gun violence epidemic and public health emergency in Alameda County: “Tackling Gun Violence Epidemic in Alameda County: A Public Health Emergency (2019-2023).”

This report represents an unprecedented collaboration between public safety and public health partners and provides data and recommendations to guide the County’s continued work to reduce violence while advancing justice reform.

The 84-page report is divided into two parts: the Public Health Impact of Violence and the Contribution of Structural Inequalities; and the Public Safety Impact of Gun Violence and the Regulation of Firearms.

Each section documents trends in rising gun violence in the wake of the COVID-19 pandemic, with special attention to the rise in gun-related deaths of women and children in Alameda County. Each section advises innovative approaches for the County to address gun violence and build safe communities.

“Between 2019 to 2023, an average of three residents were killed by firearms each week in Alameda County, and behind every statistic is a shattered family and community,” said Price.

“Under my administration, the DA’s office has taken bold steps to combat gun violence while promoting equity and healing for survivors,” she said.

The report highlights strategies for keeping guns out of the hands of dangerous people. Last month, the DA’s office secured a $5.5 million grant from the California Judicial Council to help improve compliance and case management for gun cases and gun relinquishment orders —the removal of guns from people prohibited from possessing a firearm – with law enforcement and court partners.

This effort builds on Price’s work in 2023 and 2024 in attacking the gun violence epidemic.

“We launched an innovative Gun Violence Restraining Order Outreach Project to educate communities about the availability of tools to remove guns and ammunition from people who are a danger to themselves and others and the intersectionality of domestic violence and gun violence and convened gun violence roundtable conversations with our law enforcement partners and collaborated with the Alameda County Public Health Department to produce this comprehensive report,” she said.

“We supported Oakland’s CEASEFIRE program through its transition and implemented a pilot Mentor Gun Diversion Program with our collaborative court partners, offering non-violent youth in possession of a gun pathways to interrupt the potential for escalating harm.” added Price.

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