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Idhini Platform Changing Clinical Trial Participation in BIPOC Communities One Study at a Time

NNPA NEWSWIRE — To capture the voice of the BIPOC community and their unique needs, Idhini boasts that it provides access and equitable rewards for participation in health research. “The main reason is trust,” Gerard Charlot, a principal at Idhini, a national database of BIPOC individuals available to participate in clinical trials, told the National Newspaper Publishers Association’s Let It Be Known live morning news show. Officials designed the platform to provide health information and resources and assist in the health and financial outcomes associated with health literacy.
The post Idhini Platform Changing Clinical Trial Participation in BIPOC Communities One Study at a Time first appeared on BlackPressUSA.

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By Stacy M. Brown, NNPA Newswire Senior National Correspondent
@StacyBrownMedia

Recent studies have revealed that approximately 5% of Black Americans participate in clinical trials. Unfortunately, that number proves lower in the overall BIPOC community, and an organization called Idhini works to help improve Black, Indigenous, and People of Color participation.

To capture the voice of the BIPOC community and their unique needs, Idhini boasts that it provides access and equitable rewards for participation in health research.

“The main reason is trust,” Gerard Charlot, a principal at Idhini, a national database of BIPOC individuals available to participate in clinical trials, told the National Newspaper Publishers Association’s Let It Be Known live morning news show.

Officials designed the platform to provide health information and resources and assist in the health and financial outcomes associated with health literacy.

“Our vision is to have medical research reflect the population it serves,” Charlot stated.

“If we are successful, increased access to healthcare and equitable rewards for participation will create positive health and social outcomes, a more diverse healthcare workforce, and higher financial rewards for health organizations.”

Idhini wants to close the gap in health research within the BIPOC community.

Charlot said the organization reduces the cost of acquiring health-related data and insights from Black and minority communities while increasing the lifetime value of each community member’s interaction with medical research.

He said it’s 100% virtually.

“Why not make the community successful,” Charlot stated.

“The main reason there’s a problem is the lack of trust, not just from Black people, but the BIPOC community in general.”

Idhini has partnered with There Goes My Hero, a national registry that recently launched the “Color the Registry” initiative to secure more African American donors to help save lives.

Idhini helps recruit and screen individuals to ensure suitable patients participate in trials. In addition, the platform captures attitudes and sentiments toward research and converts sentiments into analysis and reporting.

A Chicago Sun-Times study revealed that patients — particularly Black and Latino Americans — now look for pharmaceutical companies to act as information brokers.

“Across social media channels, podcasts, and other outlets, they want these companies to take three major actions: help distinguish between false and accurate health care information; be realistic and honest about the realities of diseases and treatments and show what goes on behind the scenes at pharma companies,” the study authors wrote.

The authors concluded that people are reachable in a new way, and the newfound awareness of and interest in the makers of drugs and vaccines offers a pathway to learning.

“People want to hear from pharma companies,” the study authors wrote. “They’re listening and learning. They then bring this information with them to their doctors’ appointments.”

Charlot said that’s the point of Idhini.

“Major pharmaceutical companies use our stuff because it works,” Charlot stated.

“Our approach is not the Gerard way – it’s the right way.

“You have patient-centered research where it’s now all about community research. If you’re not engaging the community, there’s no value.”

Charlot concluded:

“The future of our families is not just about you; it’s about everybody you love. And the reality is that by learning more about it, by having awareness, you empower yourself to be better. You empower your community which makes you feel like you belong, and for yourself to note that you matter.”

The post Idhini Platform Changing Clinical Trial Participation in BIPOC Communities One Study at a Time first appeared on BlackPressUSA.

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Remembering George Floyd

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OP-ED: Oregon Bill Threatens the Future of Black Owned Newspapers and Community Journalism

BLACKPRESSUSA NEWSWIRE — Nearly half of Oregon’s media outlets are now owned by national conglomerates with no lasting investment in local communities. According to an OPB analysis, Oregon has lost more than 90 news jobs (and counting) in the past five years. These were reporters, editors and photographers covering school boards, investigating corruption and telling community stories, until their jobs were cut by out-of-state corporations.

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By Dr. Benjamin F. Chavis, Jr.
President and CEO, National Newspaper Publishers Association

For decades, The Skanner newspaper in Portland, the Portland Observer, and the Portland Medium have served Portland, Oregon’s Black community and others with a vital purpose: to inform, uplift and empower. But legislation now moving through the Oregon Legislature threatens these community news institutions—and others like them.

As President and CEO of the National Newspaper Publishers Association (NNPA), which represents more than 255 Black-owned media outlets across the United States—including historic publications like The Skanner, Portland Observer, and the Portland Medium—l believe that some Oregon lawmakers would do more harm than good for local journalism and community-owned publications they are hoping to protect.

Oregon Senate Bill 686 would require large digital platforms such as Google and Meta to pay for linking to news content. The goal is to bring desperately needed support to local newsrooms. However, the approach, while well-intentioned, puts smaller, community-based publications at a future severe financial risk.

We need to ask – will these payments paid by tech companies benefit the journalists and outlets that need them most? Nearly half of Oregon’s media outlets are now owned by national conglomerates with no lasting investment in local communities. According to an OPB analysis, Oregon has lost more than 90 news jobs (and counting) in the past five years. These were reporters, editors, and photographers covering school boards, investigating corruption, and telling community stories, until their jobs were cut by out-of-state corporations.

Legislation that sends money to these national conglomerate owners—without the right safeguards to protect independent and community-based outlets—rewards the forces that caused this inequitable crisis in the first place. A just and inclusive policy must guarantee that support flows to the front lines of local journalism and not to the boardrooms of large national media corporations.

The Black Press exists to fill in the gaps left by larger newsrooms. Our reporters are trusted messengers. Our outlets serve as forums for civic engagement, accountability and cultural pride. We also increasingly rely on our digital platforms to reach our audiences, especially younger generations—where they are.

We are fervently asking Oregon lawmakers to take a step back and engage in meaningful dialogue with those most affected: community publishers, small and independent outlets and the readers we serve. The Skanner, The Portland Observer, and The Portland Medium do not have national corporate parents or large investors. And they, like many smaller, community-trusted outlets, rely on traffic from search engines and social media to boost advertising revenue, drive subscriptions, and raise awareness.

Let’s work together to build a better future for Black-owned newspapers and community journalism that is fair, local,l and representative of all Oregonians.

Dr. Benjamin F. Chavis Jr., President & CEO, National Newspaper Publishers Association

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Hate and Chaos Rise in Trump’s America

BLACKPRESSUSA NEWSWIRE — Tactics ranged from local policy manipulation to threats of violence. The SPLC documented bomb threats at 60 polling places in Georgia, traced to Russian email domains.

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By Stacy M. Brown
Black Press USA Senior National Correspondent

The Southern Poverty Law Center has identified 1,371 hate and antigovernment extremist groups operating across the United States in 2024. In its latest Year in Hate & Extremism report, the SPLC reveals how these groups are embedding themselves in politics and policymaking while targeting marginalized communities through intimidation, disinformation, and violence. “Extremists at all levels of government are using cruelty, chaos, and constant attacks on communities and our democracy to make us feel powerless,” said SPLC President Margaret Huang. The report outlines how hard-right groups aggressively targeted diversity, equity, and inclusion (DEI) initiatives throughout 2024. Figures on the far right falsely framed DEI as a threat to white Americans, with some branding it a form of “white genocide.” After the collapse of Baltimore’s Francis Scott Key Bridge, a former Utah legislator blamed the incident on DEI, posting “DEI = DIE.”

Tactics ranged from local policy manipulation to threats of violence. The SPLC documented bomb threats at 60 polling places in Georgia, traced to Russian email domains. Similar threats hit Jewish institutions and Planet Fitness locations after far-right social media accounts attacked them for trans-inclusive policies. Telegram, which SPLC describes as a hub for hate groups, helped extremists cross-recruit between neo-Nazi, QAnon, and white nationalist spaces. The platform’s lax moderation allowed groups like the Terrorgram Collective—designated terrorists by the U.S. State Department—to thrive. Militia movements were also reorganized, with 50 groups documented in 2024. Many, calling themselves “minutemen,” trained in paramilitary tactics while lobbying local governments for official recognition. These groups shared personnel and ideology with white nationalist organizations.

The manosphere continued to radicalize boys and young men. The Fresh & Fit podcast, now listed as a hate group, promoted misogyny while mocking and attacking Black women. Manosphere influencers used social media algorithms to drive youth toward male-supremacy content. Turning Point USA played a key role in pushing white nationalist rhetoric into mainstream politics. Its leader Charlie Kirk claimed native-born Americans are being replaced by immigrants, while the group advised on Project 2025 and organized Trump campaign events. “We know that these groups build their power by threatening violence, capturing political parties and government, and infesting the mainstream discourse with conspiracy theories,” said Rachel Carroll Rivas, interim director of the SPLC’s Intelligence Project. “By exposing the players, tactics, and code words of the hard right, we hope to dismantle their mythology and inspire people to fight back.”

Click here for the full report or visit http://www.splcenter.org/resources/guides/year-hate-extremism-2024.

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