Health
Make a Difference – Join the Marrow Registry
By Sally Douglas Arce
Kevin Weston was a 44-year-old journalist living in Oakland. He strove to take journalism in new directions while giving a voice to communities left out of the conversation.
Weston died in June 2014 at his home after battling a rare form of leukemia. He was 45.
Weston was African-American. His only hope for survival was to find a matching donor. Only about 8 percent of the nation’s 12.5 million registered bone marrow donors are African American, which made Weston’s chance of finding a bone marrow match quite slim.
“One day our lives were amazing,” says Lateefah Simon, Weston’s wife. “He was diagnosed with leukemia, and two years later he died.
Race does matter.
You can save a generation from pain, agony and loss. More donors for all people of color are needed. It is unnecessary that Black and Brown people are dying this way.
Weston died young, and it was avoidable. Donors can create hope. People can live longer.”
Brandi Lewis is another African American with a blood disorder. In 2008, at 19-years-old, she was diagnosed with Aplastic Anemia. It was her freshman year at University of North Alabama.
She needed a marrow match in order to have a transplant.
No one in her family was a match. No one on the Be the Match registry was a match. Unable to have a marrow transplant, Lewis had platelet transfusions twice a week. Her immune system was compromised, and Lewis spent one year at home and did not go outdoors.
In 2010, she was in remission and returned to college, graduating from Northern Alabama University in 2012.
In 2013, while in remission, Lewis and her mother started a nonprofit organization called Brandi’s Blessings to spread awareness about blood disorders and support blood disorder patients.
Brandi and her mother fundraise to give care packages to people in the hospital and help pay for co-payments and medical bills.
Then, in 2014, Lewis relapsed. “We looked in the national marrow registry, and you would think that six years later, more people would have registered, and I would have found a match,” Lewis says. “But that was not the case. There was no match for me. This was very hard on my family.”
Lewis is still looking for a donor. “People should join the registry and become committed donors,” Lewis says. “You are giving someone like me their life back.”
In 2015, an estimated 162,000 people in the U.S. were diagnosed with a serious blood disease.[1]
Finding a marrow match can be like finding a needle in a haystack, and ethnic minorities face the worst odds, say medical experts.
Registering is simple – just a swab of the inside of your cheek. People of color, who are 18 to 44 years old, are encouraged to commit to registering.
Some of many marrow drives will held Tuesday, Wednesday and Thursday – Feb. 23 – 25 from 11 a.m. to 2 p.m. at UC Berkeley, front of Dwinelle Hall, Sather Plaza and South Drive, at UC Berkeley.
To find a registration drive in your area, go to www.aadp.org/drive/
California Black Media
Gov. Newsom Goes to Washington to Advocate for California Priorities
Gov. Gavin Newsom traveled to Washington, D.C., for meetings with senior Biden-Harris Administration officials and members of California’s congressional delegation. During the week, he pushed for increased resources to improve public safety and quality of life in California.
By Bo Tefu, California Black Media
Gov. Gavin Newsom traveled to Washington, D.C., for meetings with senior Biden-Harris Administration officials and members of California’s congressional delegation.
During the week, he pushed for increased resources to improve public safety and quality of life in California.
“California is continuing our work to secure additional tools and resources to improve access to health care, clean air and water, and secure critical funding to support communities recovering from disasters,” said Newsom.
At the White House, Newsom met with President Joe Biden and key officials, advocating for disaster relief funding, healthcare expansion, and environmental protection. He also engaged in discussions with senior Biden-Harris officials, including Interior Secretary Deb Haaland, to address water quality improvements and the San Luis Dam project, which will support water supplies for two million Californians.
“Building on our strong partnership with the Biden-Harris Administration, California is working closely with the White House over the next two months to deliver the critical protections and resources our communities need,” Newsom said.
On Capitol Hill, Newsom met with California Senators Alex Padilla and Adam Schiff, along with other Congressional leaders, to emphasize the need to approve pending disaster funding, healthcare programs, and environmental protections. He also previewed California’s upcoming special session to proactively address potential federal challenges when President-elect Donald Trump is sworn into office.
Newsom’s discussions also focused on securing Medicaid waivers from the Center for Medicare & Medicaid Services (CMS) to enhance behavioral health services and reduce homelessness. The state seeks approval for the BH-CONNECT waiver, which would address behavioral health and homelessness, and the MCO Tax Waiver, which would provide over $20 billion for Medi-Cal to improve healthcare access.
Additionally, California is pushing for Clean Air Act waivers from the U.S. Environmental Protection Agency (EPA), which are crucial for enforcing air quality regulations. These measures are projected to prevent 11,000 premature deaths and provide $116 billion in health benefits over the next three decades, according to the Governor’s office.
California Black Media
California Reports First Case of Mpox in the United States
On Nov. 16, the California Department of Public Health (CDPH), reported the first known case of clade 1 Mpox, previously known as Monkeypox, in the United States. However, the risk to the public remains low, according to the CDPH.
By Bo Tefu, California Black Media
On Nov. 16, the California Department of Public Health (CDPH), reported the first known case of clade 1 Mpox, previously known as Monkeypox, in the United States.
However, the risk to the public remains low, according to the CDPH.
“This case was confirmed in an individual who recently traveled from Africa and is related to the ongoing outbreak of clade I mpox in Central and Eastern Africa,” reads a statement the CDPH released.
According to the DDPH, “The affected individual received health care in San Mateo County based on their travel history and symptoms. The individual is isolating at home and recovering.”
Public health workers are also conducting a contact tracing exercise and reaching out to people who have been in close proximity to the affected person.
“The mpox specimens from the traveler are being sent to the CDC for further laboratory testing,” the CDPH press release continues.
Californians can take a number of steps to prevent Mpox. Here’s more information:
Preventing Mpox Infection
It appears clade I mpox spreads in a similar manner as clade II mpox, through close (skin-skin), intimate and sexual contact. The identification of a potentially more severe mpox version in the United States is a good reminder for individuals who have certain risk factors to take preventive action, including:
- Getting vaccinated if you may be at risk for mpox. For the greatest protection, make sure you get both doses of the vaccine. Find mpox vaccine (JYNNEOS) near you.
- Taking precautions if you were exposed to mpox. Get the mpox vaccine before symptoms develop and consider avoiding intimate contact with others for 21 days. Watch yourself for symptoms and get tested if they develop.
- Preventing spread if you have been told you have mpox. Avoid contact with others until the rash is healed, clean and disinfect shared areas in the home, and notify people who may have been exposed.
- Talking to your sexual partner(s).
- Avoiding skin-to-skin contact with those who have a rash or sores that look like mpox.
- Not sharing items with someone who has mpox.
- Washing your hands often.
- Protecting yourself when caring for someone with mpox by using masks, gowns and gloves.
Visit the CDPH website to learn more about Mpox with Sexual Health Toolkits and a Campaign Materials Page.
California Black Media
California Department of Aging Offers Free Resources for Family Caregivers in November
In honor of National Family Caregivers Month this November, the California Department of Aging (CDA) is spotlighting a range of free resources to support caregivers of older adults and individuals with disabilities. Through its extensive network of Caregiver Resource Centers (CRCs) and Area Agencies on Aging (AAAs), the state provides essential tools to help caregivers manage their responsibilities while prioritizing their own health and well-being.
By Bo Tefu, California Black Media
In honor of National Family Caregivers Month this November, the California Department of Aging (CDA) is spotlighting a range of free resources to support caregivers of older adults and individuals with disabilities. Through its extensive network of Caregiver Resource Centers (CRCs) and Area Agencies on Aging (AAAs), the state provides essential tools to help caregivers manage their responsibilities while prioritizing their own health and well-being. Resources offered include free education and training, counseling services, respite care, and financial and legal assistance.
“Caregiving is a great act of love, and this month — and every day — we uplift California’s caregivers as the under-recognized backbone of our families and communities,” said Susan DeMarois, director of the CDA. DeMarois emphasized the need for caregivers to access available support to better balance their roles without compromising their own health.
California is home to more than 4.5 million unpaid family caregivers, who contribute an estimated $81 billion annually in economic value through their care. Most caregivers are women who balance work, family, and caregiving responsibilities, often at the cost of their physical and emotional health. Given California’s aging population, the demand for caregiver support is rapidly growing, underscoring the importance of these free resources.
Thousands of caregivers accessed these services in the 2022-2023 fiscal year, benefiting from tools like professional care management and respite support. The Aging in California Resource Guide, available in six languages, offers additional information on caregiver support.
Caregivers can learn more about available resources by visiting the CDA website at aging.ca.gov and connecting with local CRCs or AAAs to discover personalized services to support them in their caregiving journey.
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