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Racial disparities make it harder to ‘die well’

MINNESOTA SPOKESMAN – RECORDER — African Americans experience an earlier onset and greater risk of what may be referred to as lifestyle-related diseases — cardiovascular disease, stroke and diabetes. More than 40 percent of African Americans over the age of 20 are diagnosed with high blood pressure, compared to 32 percent of all Americans.

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By Jason Ashe and Danielle L. Beatty Moody

The world got an idea recently from 92-year-old Buddhist monk and peace activist Thich Nhat Hanh, who popularized mindfulness and meditation in the U.S. The monk returned to his home in Vietnam to pass his remaining years. Many admired his desire to live his remaining time in peace and dignity.

Researchers from the University of California-San Diego recently did a literature search to understand what Americans might consider to be a “good death” or “successful dying.” As can be expected, their findings varied. People’s views were determined by their religious, social and cultural norms and influences.

The researchers urged healthcare providers, caregivers and the lay community to have open dialogues about preferences for the dying process.

As scholars who study social health and human services psychology, we found something missing in these conversations — how race impacts life span. It’s important to recognize that not everyone has an equal chance at “dying well.”

Black population and ill health

Take the disease burden of the African American population.

African Americans experience an earlier onset and greater risk of what may be referred to as lifestyle-related diseases — cardiovascular disease, stroke and diabetes. More than 40 percent of African Americans over the age of 20 are diagnosed with high blood pressure, compared to 32 percent of all Americans.

In addition, the Centers for Disease Control and Prevention report that the likelihood of experiencing a first stroke is nearly twice as high for African Americans compared with Whites. African Americans are more than two times more likely to experience a stroke before the age of 55. At age 45, the mortality rate from stroke is three times higher for Blacks compared to Whites.

This disease burden consequently leads to their higher mortality rates and overall shorter life expectancy for Blacks compared to Whites.

And while the life expectancy gap differs by only a few years, 75.3 for Blacks and 78.9 for Whites as of 2016, research suggests that African Americans suffer more sickness. This is due in part to the increased prevalence of high blood pressure, obesity and diabetes in this population.

Genetics, biological factors and lifestyle behaviors, such as diet and smoking, help explain a portion of these differences. However, researchers are still learning how race-related social experiences and physical environments affect health, illness and mortality.

Access to health care

One factor is that African Americans have historically underutilized preventive medicine and healthcare services. They also delay seeking routine, necessary health care — or may not follow medical advice.

One study found that during an average month, 35 percent fewer Blacks visited a physician’s office, and 27 percent fewer visited an outpatient clinic compared with Whites. “The only time I go to the doctor is when something is really hurting. But otherwise, I don’t even know my doctor’s name,” said a young African American male during a research study in Chicago.

There are reasons for this mistrust. Researchers who study medical mistrust argue that high-profile cases of medical experiments are still playing a role in how African Americans view healthcare systems and providers.

In the past, physicians have intentionally done harm against people of color. A well-known case is the “Tuskegee Study of Untreated Syphilis” in African American men, which lasted from 1932 to 1972.

In this clinical study, 399 African American men who had already contracted syphilis were told that they were receiving free health care from the government. In fact, doctors, knowing their critical condition, were awaiting their deaths to subsequently conduct autopsies and study the disease’s progression.

Even though penicillin had been proven to treat syphilis by 1947, these men were denied the treatment.

Why discrimination matters for health

Other studies suggest that regardless of their knowledge of past medical abuse, many African Americans have low levels of trust in medical establishments.

“Doctors, like all other people, are subject to prejudice and discrimination,” writes Damon Tweedy, author of Black Man in a White Coat: A Doctor’s Reflections on Race and Medicine. “While bias can be a problem in any profession, in medicine, the stakes are much higher.”

Unfortunately, these fears are underscored by empirical evidence that African Americans are less likely to receive pain medication management, higher quality care, or survive surgical procedures.

In addition, a growing body of literature has established that experiences of discrimination are extremely harmful to physical and mental health, particularly among African Americans. This research adds to the body of evidence that experiences of discrimination harm people’s health and may contribute to the increased rates of premature decline and death among Blacks.

What does it take to SOTdie well?

As African American scholars, we argue the “art of dying well” may be a distant and romantic notion for the African American community. African Americans are also exposed to earlier and more frequent deaths of close loved ones, immediate family members and friends.

Their increased “vulnerability to untimely deaths,” writes Duke University scholar Karla Holloway, shows African Americans’ lack of access to equitable and fair paths in life.

Before defining “a good death,” American society must first begin to fundamentally address how to promote quality living and longevity across all racial groups.

Story republished with permission from The Conversation.

Jason Ashe is a doctoral student in human services psychology at the University of Maryland. Danielle L. Beatty Moody is an assistant professor of behavioral medicine at the University of Maryland.

This article originally appeared in the Minnesota Spokesman-Recorder

By Jason Ashe and Danielle L. Beatty Moody

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Activism

OPINION: Your Voice and Vote Impact the Quality of Your Health Care

One of the most dangerous developments we’re seeing now? Deep federal cuts are being proposed to Medicaid, the life-saving health insurance program that covers nearly 80 million lower-income individuals nationwide. That is approximately 15 million Californians and about 1 million of the state’s nearly 3 million Black Californians who are at risk of losing their healthcare. 

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Rhonda M. Smith.
Rhonda M. Smith.

By Rhonda M. Smith, Special to California Black Media Partners

Shortly after last year’s election, I hopped into a Lyft and struck up a conversation with the driver. As we talked, the topic inevitably turned to politics. He confidently told me that he didn’t vote — not because he supported Donald Trump, but because he didn’t like Kamala Harris’ résumé. When I asked what exactly he didn’t like, he couldn’t specifically articulate his dislike or point to anything specific. In his words, he “just didn’t like her résumé.”

That moment really hit hard for me. As a Black woman, I’ve lived through enough election cycles to recognize how often uncertainty, misinformation, or political apathy keep people from voting, especially Black voters whose voices are historically left out of the conversation and whose health, economic security, and opportunities are directly impacted by the individual elected to office, and the legislative branches and political parties that push forth their agenda.

That conversation with the Lyft driver reflects a troubling surge in fear-driven politics across our country. We’ve seen White House executive orders gut federal programs meant to help our most vulnerable populations and policies that systematically exclude or harm Black and underserved communities.

One of the most dangerous developments we’re seeing now? Deep federal cuts are being proposed to Medicaid, the life-saving health insurance program that covers nearly 80 million lower-income individuals nationwide. That is approximately 15 million Californians and about 1 million of the state’s nearly 3 million Black Californians who are at risk of losing their healthcare.

Medicaid, called Medi-Cal in California, doesn’t just cover care. It protects individuals and families from medical debt, keeps rural hospitals open, creates jobs, and helps our communities thrive. Simply put; Medicaid is a lifeline for 1 in 5 Black Americans. For many, it’s the only thing standing between them and a medical emergency they can’t afford, especially with the skyrocketing costs of health care. The proposed cuts mean up to 7.2 million Black Americans could lose their healthcare coverage, making it harder for them to receive timely, life-saving care. Cuts to Medicaid would also result in fewer prenatal visits, delayed cancer screenings, unfilled prescriptions, and closures of community clinics. When healthcare is inaccessible or unaffordable, it doesn’t just harm individuals, it weakens entire communities and widens inequities.

The reality is Black Americans already face disproportionately higher rates of poorer health outcomes. Our life expectancy is nearly five years shorter in comparison to White Americans. Black pregnant people are 3.6 times more likely to die during pregnancy or postpartum than their white counterparts.

These policies don’t happen in a vacuum. They are determined by who holds power and who shows up to vote. Showing up amplifies our voices. Taking action and exercising our right to vote is how we express our power.

I urge you to start today. Call your representatives, on both sides of the aisle, and demand they protect Medicaid (Medi-Cal), the Affordable Care Act (Covered CA), and access to food assistance programs, maternal health resources, mental health services, and protect our basic freedoms and human rights. Stay informed, talk to your neighbors and register to vote.

About the Author

Rhonda M. Smith is the Executive Director of the California Black Health Network, a statewide nonprofit dedicated to advancing health equity for all Black Californians.

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Activism

Oakland Hosts Town Hall Addressing Lead Hazards in City Housing

According to the city, there are 22,000 households in need of services for lead issues, most in predominantly low-income or Black and Latino neighborhoods, but only 550 to 600 homes are addressed every year. The city is hoping to use part of the multimillion-dollar settlement to increase the number of households served each year.

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iStock.
iStock.

By Magaly Muñoz

The City of Oakland’s Housing and Community Development Department hosted a town hall in the Fruitvale to discuss the efforts being undertaken to remove lead primarily found in housing in East and West Oakland.

In 2021, the city was awarded $14 million out of a $24 million legal settlement from a lawsuit against paint distributors for selling lead-based paint that has affected hundreds of families in Oakland and Alameda County. The funding is intended to be used for lead poisoning reduction and prevention services in paint only, not water or other sources as has been found recently in schools across the city.

The settlement can be used for developing or enhancing programs that abate lead-based paint, providing services to individuals, particularly exposed children, educating the public about hazards caused by lead paint, and covering attorney’s fees incurred in pursuing litigation.

According to the city, there are 22,000 households in need of services for lead issues, most in predominantly low-income or Black and Latino neighborhoods, but only 550 to 600 homes are addressed every year. The city is hoping to use part of the multimillion-dollar settlement to increase the number of households served each year.

Most of the homes affected were built prior to 1978, and 12,000 of these homes are considered to be at high risk for lead poisoning.

City councilmember Noel Gallo, who represents a few of the lead-affected Census tracts, said the majority of the poisoned kids and families are coming directly from neighborhoods like the Fruitvale.

“When you look at the [kids being admitted] at the children’s hospital, they’re coming from this community,” Gallo said at the town hall.

In order to eventually rid the highest impacted homes of lead poisoning, the city intends to create programs and activities such as lead-based paint inspections and assessments, full abatement designed to permanently eliminate lead-based paint, or partial abatement for repairs, painting, and specialized cleaning meant for temporary reduction of hazards.

In feedback for what the city could implement in their programming, residents in attendance of the event said they want more accessibility to resources, like blood testing, and information from officials about lead poisoning symptoms, hotlines for assistance, and updates on the reduction of lead in their communities.

Attendees also asked how they’d know where they are on the prioritization list and what would be done to address lead in the water found at several school sites in Oakland last year.

City staff said there will be a follow-up event to gather more community input for programming in August, with finalizations happening in the fall and a pilot launch in early 2026.

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Bay Area

State Orders Cleanup of Former Richmond Landfill

There is no immediate public hazard at the fence line of the site, which is located on the city’s southeastern shoreline, at the foot of S. 51st Street. However, the “site’s wastes pose an unacceptable long-term risk,” according to a CDTSC statement. Also, since the uncapped site sits along a creek and the Bay, wastes can wash off during each rain and high tide, the agency stated.

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Site map provided by the California Department of Toxic Substances Control.
Site map provided by the California Department of Toxic Substances Control.

The Richmond Standard

The California Department of Toxic Substances Control (CDTSC) is ordering Union Pacific Railroad Company (UPRR) and Bayer CropScience, Inc. to clean up the former Blair Southern Pacific Landfill in Richmond due to findings of elevated levels of lead, banned pesticides like DDT, and radioactive material at the site.

There is no immediate public hazard at the fence line of the site, which is located on the city’s southeastern shoreline, at the foot of S. 51st Street. However, the “site’s wastes pose an unacceptable long-term risk,” according to a CDTSC statement. Also, since the uncapped site sits along a creek and the Bay, wastes can wash off during each rain and high tide, the agency stated.

Bayer and UPRR were ordered to clean up the site as it is their predecessor companies that are deemed responsible for the hazardous waste. The site was used from the 1950s to the 1980s, before modern environmental laws were in place, according to the CDTSC.

“During this time, the site was leased to landfill operators, who developed and operated the site as a series of landfills for disposal of industrial and non-industrial wastes,” the CDTSC stated.

The state’s order requires Bayer and UPRR to safely remove and dispose of the radioactive materials and includes penalties of up to $25,000 per day for noncompliance.

“There will be opportunities for public involvement during the development of the cleanup plan and at the Richmond Southeast Shoreline Community Advisory Group (CAG) meetings, which meet on Zoom the second Thursday of every month,” said Richmond City Councilmember Soheila Bana.

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