Economy

Racial disparities make it harder to ‘die well’

MINNESOTA SPOKESMAN – RECORDER — African Americans experience an earlier onset and greater risk of what may be referred to as lifestyle-related diseases — cardiovascular disease, stroke and diabetes. More than 40 percent of African Americans over the age of 20 are diagnosed with high blood pressure, compared to 32 percent of all Americans.

Published

6 years ago

July 22, 2019

By Jason Ashe and Danielle L. Beatty Moody

The world got an idea recently from 92-year-old Buddhist monk and peace activist Thich Nhat Hanh, who popularized mindfulness and meditation in the U.S. The monk returned to his home in Vietnam to pass his remaining years. Many admired his desire to live his remaining time in peace and dignity.

Researchers from the University of California-San Diego recently did a literature search to understand what Americans might consider to be a “good death” or “successful dying.” As can be expected, their findings varied. People’s views were determined by their religious, social and cultural norms and influences.

The researchers urged healthcare providers, caregivers and the lay community to have open dialogues about preferences for the dying process.

As scholars who study social health and human services psychology, we found something missing in these conversations — how race impacts life span. It’s important to recognize that not everyone has an equal chance at “dying well.”

Black population and ill health

Take the disease burden of the African American population.

African Americans experience an earlier onset and greater risk of what may be referred to as lifestyle-related diseases — cardiovascular disease, stroke and diabetes. More than 40 percent of African Americans over the age of 20 are diagnosed with high blood pressure, compared to 32 percent of all Americans.

In addition, the Centers for Disease Control and Prevention report that the likelihood of experiencing a first stroke is nearly twice as high for African Americans compared with Whites. African Americans are more than two times more likely to experience a stroke before the age of 55. At age 45, the mortality rate from stroke is three times higher for Blacks compared to Whites.

This disease burden consequently leads to their higher mortality rates and overall shorter life expectancy for Blacks compared to Whites.

And while the life expectancy gap differs by only a few years, 75.3 for Blacks and 78.9 for Whites as of 2016, research suggests that African Americans suffer more sickness. This is due in part to the increased prevalence of high blood pressure, obesity and diabetes in this population.

Genetics, biological factors and lifestyle behaviors, such as diet and smoking, help explain a portion of these differences. However, researchers are still learning how race-related social experiences and physical environments affect health, illness and mortality.

Access to health care

One factor is that African Americans have historically underutilized preventive medicine and healthcare services. They also delay seeking routine, necessary health care — or may not follow medical advice.

One study found that during an average month, 35 percent fewer Blacks visited a physician’s office, and 27 percent fewer visited an outpatient clinic compared with Whites. “The only time I go to the doctor is when something is really hurting. But otherwise, I don’t even know my doctor’s name,” said a young African American male during a research study in Chicago.

There are reasons for this mistrust. Researchers who study medical mistrust argue that high-profile cases of medical experiments are still playing a role in how African Americans view healthcare systems and providers.

In the past, physicians have intentionally done harm against people of color. A well-known case is the “Tuskegee Study of Untreated Syphilis” in African American men, which lasted from 1932 to 1972.

In this clinical study, 399 African American men who had already contracted syphilis were told that they were receiving free health care from the government. In fact, doctors, knowing their critical condition, were awaiting their deaths to subsequently conduct autopsies and study the disease’s progression.

Even though penicillin had been proven to treat syphilis by 1947, these men were denied the treatment.

Why discrimination matters for health

Other studies suggest that regardless of their knowledge of past medical abuse, many African Americans have low levels of trust in medical establishments.

“Doctors, like all other people, are subject to prejudice and discrimination,” writes Damon Tweedy, author of Black Man in a White Coat: A Doctor’s Reflections on Race and Medicine. “While bias can be a problem in any profession, in medicine, the stakes are much higher.”

Unfortunately, these fears are underscored by empirical evidence that African Americans are less likely to receive pain medication management, higher quality care, or survive surgical procedures.

In addition, a growing body of literature has established that experiences of discrimination are extremely harmful to physical and mental health, particularly among African Americans. This research adds to the body of evidence that experiences of discrimination harm people’s health and may contribute to the increased rates of premature decline and death among Blacks.

What does it take to SOTdie well?

As African American scholars, we argue the “art of dying well” may be a distant and romantic notion for the African American community. African Americans are also exposed to earlier and more frequent deaths of close loved ones, immediate family members and friends.

Their increased “vulnerability to untimely deaths,” writes Duke University scholar Karla Holloway, shows African Americans’ lack of access to equitable and fair paths in life.

Before defining “a good death,” American society must first begin to fundamentally address how to promote quality living and longevity across all racial groups.

Story republished with permission from The Conversation.

Jason Ashe is a doctoral student in human services psychology at the University of Maryland. Danielle L. Beatty Moody is an assistant professor of behavioral medicine at the University of Maryland.

This article originally appeared in the Minnesota Spokesman-Recorder.

By Jason Ashe and Danielle L. Beatty Moody

Posts by By Jason Ashe and Danielle L. Beatty Moody

Up Next

UnitedHealth Invests $8M to Educate, Train Minority Data Scientists

Don't Miss

Serena Williams gets first Wheaties box cover, hopes to inspire next generation

By Jason Ashe and Danielle L. Beatty Moody

1 Comment

Activism

OPINION: California’s Legislature Has the Wrong Prescription for the Affordability Crisis — Gov. Newsom’s Plan Hits the Mark

Last month, Gov. Newsom included measures in his budget that would encourage greater transparency, accountability, and affordability across the prescription drug supply chain. His plan would deliver real relief to struggling Californians. It would also help expose the hidden markups and practices by big drug companies that push the prices of prescription drugs higher and higher. The legislature should follow the Governor’s lead and embrace sensible, fair regulations that will not raise the cost of medications.

Published

5 days ago

June 18, 2025

Oakland Post

Rev. Dr. Lawrence E. VanHook. Courtesy of Rev. Dr. Lawrence E. VanHook.

By Rev. Dr. Lawrence E. VanHook

As a pastor and East Bay resident, I see firsthand how my community struggles with the rising cost of everyday living. A fellow pastor in Oakland recently told me he cuts his pills in half to make them last longer because of the crushing costs of drugs.

Meanwhile, community members are contending with skyrocketing grocery prices and a lack of affordable healthcare options, while businesses are being forced to close their doors.

Our community is hurting. Things have to change.

The most pressing issue that demands our leaders’ attention is rising healthcare costs, and particularly the rising cost of medications. Annual prescription drug costs in California have spiked by nearly 50% since 2018, from $9.1 billion to $13.6 billion.

Some lawmakers, however, have advanced legislation that would drive up healthcare costs and set communities like mine back further.

I’m particularly concerned with Senate Bill (SB) 41, sponsored by Sen. Scott Wiener (D-San Francisco), a carbon copy of a 2024 bill that I strongly opposed and Gov. Newsom rightly vetoed. This bill would impose significant healthcare costs on patients, small businesses, and working families, while allowing big drug companies to increase their profits.

SB 41 would impose a new $10.05 pharmacy fee for every prescription filled in California. This new fee, which would apply to millions of Californians, is roughly five times higher than the current average of $2.

For example, a Bay Area family with five monthly prescriptions would be forced to shoulder about $500 more in annual health costs. If a small business covers 25 employees, each with four prescription fills per month (the national average), that would add nearly $10,000 per year in health care costs.

This bill would also restrict how health plan sponsors — like employers, unions, state plans, Medicare, and Medicaid — partner with pharmacy benefit managers (PBMs) to negotiate against big drug companies and deliver the lowest possible costs for employees and members. By mandating a flat fee for pharmacy benefit services, this misguided legislation would undercut your health plan’s ability to drive down costs while handing more profits to pharmaceutical manufacturers.

This bill would also endanger patients by eliminating safety requirements for pharmacies that dispense complex and costly specialty medications. Additionally, it would restrict home delivery for prescriptions, a convenient and affordable service that many families rely on.

Instead of repeating the same tired plan laid out in the big pharma-backed playbook, lawmakers should embrace Newsom’s transparency-first approach and prioritize our communities.

Let’s urge our state legislators to reject policies like SB 41 that would make a difficult situation even worse for communities like ours.

About the Author

Rev. Dr. VanHook is the founder and pastor of The Community Church in Oakland and the founder of The Charis House, a re-entry facility for men recovering from alcohol and drug abuse.

Oakland Post

Posts by Oakland Post

Activism

Congress Says Yes to Rep. Simon’s Disability Hiring and Small Biz Support Bill

“As the first congenitally blind person to serve in Congress, I am incredibly honored to lead and excited to celebrate the House passage of the ‘ThinkDIFFERENTLY About Disability Employment Act,’” said Simon.

Published

6 days ago

June 17, 2025

Oakland Post

U.S. Rep. Lateefah Simon (D-CA-12). File photo.

By Bo Tefu, California Black Media

The House of Representatives unanimously passed the “ThinkDIFFERENTLY About Disability Employment Act” on June 3, marking a major win for U.S. Rep. Lateefah Simon (D-CA-12) and co-sponsor Rep. Pete Stauber (R-MN-08) in their bipartisan effort to promote inclusive hiring and boost small business accessibility.

The legislation establishes a federal partnership between the Small Business Administration (SBA) and the National Council on Disability to help small businesses across the U.S. hire more individuals with disabilities and provide resources for disabled entrepreneurs.

“Small businesses are the lifeblood of cities, making them accessible for all will maximize local economic activity and broaden the job market to everyone who is seeking to contribute to their communities,” she continued. “Investments in business and talent in our communities shouldn’t be limited to just those who are not disabled. Full stop, period.”

Since taking office in January 2025, Simon has introduced six bills. The House has approved two of them: this measure and the “Assisting Small Businesses, Not Fraudsters Act.”

Simon, a lifelong disability rights advocate and former BART board member, has focused her career on improving access, from public transit to the job market.

Oakland Post

Posts by Oakland Post

Activism

Over 500 Join Interfaith Rally in Solidarity with Los Angeles Resistance to Trump Invasion

Over 500 people attended the Tuesday evening rally in Oakland, which was held simultaneously with a prayer vigil in Los Angeles, where rabbis, pastors, Muslim faith leaders, and indigenous spiritual leaders gathered to pray and speak out about the federal government’s abuses of power.

Published

1 week ago

June 14, 2025

Oakland Post

Hundreds gathered at Fruitvale Plaza in Oakland on June 10 in solidarity with immigrants and opposed to Trump’s use of armed federal agents in Los Angeles. Photo by Beth LaBerge/KQED.

By Post Staff

n response to last week’s “invasion” of Los Angeles by armed and masked federal agents, East Bay faith leaders and community members, joined by Oakland Mayor Barbara Lee and Alameda County Supervisor Nikki Fortunato Bas, held an Interfaith vigil Tuesday evening at Oakland’s Fruitvale Plaza in support of Los Angeles residents and immigrant communities across the country.

Earlier on the same day, hundreds of protesters at San Francisco and Concord immigration courts shut down the courts after masked, plainclothes federal ICE agents detained people seeking asylum attending their court hearings.

“Too many families in Los Angeles torn apart by this invasion still do not have access to a lawyer — and that’s not an accident. We, the people, the community, are here to say, ‘Enough!’ We must keep organizing and demand that ICE and our government respect the rights of all people and uphold the principle of due process,” said Andrés Pomart with Trabajadores Unidos Workers United.

“We know that when we organize, we win. That’s why our communities – Black, Brown, and working-class – are coming together to support each other in solidarity. Together, as immigrant communities and as a united working class, we will not be divided nor intimidated nor live in fear,” Pomart said.

“Immigrant communities — yes, our immigrant communities — are the heartbeat of Oakland, enriching our neighborhoods with diverse cultures, languages and experience, and deserve the quality of life that every human being deserves. An attack on one of us is an attack on all of us. “Your city remains committed to protecting our immigrant neighbors,” said Mayor Lee.

“When Trump’s armed goons come for our families and communities, when they trample on our shared values of freedom and opportunity, when they make a mockery of our rights to due process, we are called to step up for our neighbors,” said Supervisor Bas. “This is not just an immigration story. It’s a story about who we are — and how we respond when our neighbors are under attack and when the president of the United States abuses his powers. When they come for one of us, they come for all of us.”

Said Kampala Taiz-Rancifer, the Oakland teachers’ union president, “It is time for us to say, ‘Not in our city.’ We will stop, we will block, we will drive out ICE. We will protect our classrooms. We will protect our streets. We will protect our homes. Together, we rise for the dignity of our families and our right to live without fear.”

“I feel that the president and the current administration is grossly overstepping and abusing their power,” Rabbi Chai Levy, speaking to KQED. “I feel that, as a religious person, communities of faith need to show up and stand in solidarity with immigrants who are threatened and afraid. “It’s important to show up as people of conscience and morality and say that we’re against what our government is doing.”

The vigil was hosted by Bay Resistance, and co-sponsoring organizations included the Alameda Labor Council, Alliance of Californians for Community Empowerment (ACCE), Faith in Action East Bay, Restore Oakland, East Bay Alliance for a Sustainable Economy (EBASE), Ella Baker Center for Human Rights, Oakland Rising, Faith Alliance for a Moral Economy, SEIU Local 1021, Communities United for Restorative Youth Justice (CURYJ), SEIU United Service Workers West, Jewish Voice for Peace Bay Area, Jobs with Justice San Francisco, Interfaith Movement for Human Integrity, Urban Peace Movement, and Trabajadores Unidos Workers United.