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Sickle Cell Consortium to Host 9th Annual Leadership Summit & General Assembly in Atlanta, Georgia

The Sickle Cell Consortium is a national organization dedicated to improving the lives of individuals with sickle cell disease through advocacy, education, and community collaboration. Over the past decade, the Consortium has transformed the landscape of sickle cell advocacy. It remains a trusted voice in the fight for better care and resources for sickle cell […]

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The Sickle Cell Consortium is a national organization dedicated to improving the lives of individuals with sickle cell disease through advocacy, education, and community collaboration. Over the past decade, the Consortium has transformed the landscape of sickle cell advocacy. It remains a trusted voice in the fight for better care and resources for sickle cell warriors.

The Sickle Cell Community Consortium will host its 9th Annual Leadership Summit & General Assembly, April 23-27, 2025, at the Atlanta Airport Marriott. This year’s theme, “Legacy of Leadership: Advancing Leadership for Impactful Change,” sets the tone for a transformative experience dedicated to elevating the voices and leadership of sickle cell patients, caregivers, and community-based organizations (CBOs).

This exclusive summit, sponsored in part by Pfizer and Vertex, continues to be the only national conference led by and for the sickle cell community. It is built on the foundation of the powerful principle: “Nothing for us, without us.” Each year, credentialed partners, including independent patient advocates (IPCAs), caregiver leaders, and grassroots CBOs, come together with researchers, industry professionals, and government leaders to create meaningful collaborations that inspire measurable change.

 

“This summit is more than a meeting—it’s a movement. It’s where grassroots leadership, lived experience, and institutional expertise come together to shape the future of sickle cell care and advocacy,” said SC3 Executive Leadership.

As part of its 10th anniversary, the ‘Consortium’ is spotlighting its most pressing initiatives, including the #WeAreTheCure project—a call to action for increasing organ and marrow donor registrations to save the lives of sickle cell warriors.

Two powerful stories underscore the urgency of this initiative: Tahirah, a young sickle cell warrior in need of a kidney donor match, and Dr. Lakeia Bailey, the Consortium’s Executive Director, actively seeking a bone marrow match. These stories highlight the life-saving potential of community support and donor registration.

Summit Highlights Include:

  • Expert advocacy and best-practice training for CBO leaders
  • Strategic policy discussions and collaborative sessions
  • The Annual Business Meeting of the General Assembly
  • Interactive workshops on funding, programming, and research partnerships
  • Major updates on SC3 projects, initiatives, and national impact

 

Unlike traditional conferences, the Leadership Summit is intentionally hands-on and solution-focused, designed to equip attendees with practical tools and resources to return to their communities. It’s a space where grassroots leaders are not just included—they are centered.

General attendees, sponsors, researchers, and non-credentialed partners must register separately for the leadership summit at https://tinyurl.com/sc3leadershipEB25

For more information, visit: https://shorturl.at/Tv3uq

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LIHEAP Funds Released After Weeks of Delay as States and the District Rush to Protect Households from the Cold

BLACKPRESSUSA NEWSWIRE — The federal government has released $3.6 billion in home heating assistance after a delay that left states preparing for the start of winter without the program’s annual funding.

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By Stacy M. Brown
Black Press USA Senior National Correspondent

The federal government has released $3.6 billion in home heating assistance after a delay that left states preparing for the start of winter without the program’s annual funding. The Low-Income Home Energy Assistance Program, known as LIHEAP, helps eligible households pay heating and cooling bills. The release follows a shutdown that stretched 43 days and pushed agencies across the country to warn families of possible disruptions.

State officials in Minnesota, Kansas, New York, and Pennsylvania had already issued alerts that the delay could slow the processing of applications or force families to wait until December for help. In Pennsylvania, more than 300,000 households depend on the program each year. Minnesota officials noted that older adults, young children, and people with disabilities face the highest risk as temperatures fall.

The delay also raised concerns among advocates who track household debt tied to rising utility costs. National Energy Assistance Directors Association Executive Director Mark Wolfe said the funds were “essential and long overdue” and added that high arrearages and increased energy prices have strained families seeking help.

Some states faced additional pressure when other services were affected by the shutdown. According to data reviewed by national energy advocates, roughly 68 percent of LIHEAP households also receive nutrition assistance, and the freeze in multiple programs increased the financial burden on low-income residents. Wolfe said families were placed in “an even more precarious situation than usual” as the shutdown stretched into November.

In Maryland, lawmakers urged the Trump administration to release funds after the state recorded its first cold-related death of the season. The Maryland Department of Health reported that a man in his 30s was found outdoors in Frederick County when temperatures dropped. Last winter, the state documented 75 cold-related deaths, the highest number in five years. Rep Kweisi Mfume joined more than 100 House members calling for immediate federal action and said LIHEAP “is not a luxury” for the 100,000 Maryland households that rely on it. He added that seniors and veterans would be placed at risk if the program remained stalled.

Maryland Gov. Wes Moore used $10.1 million in state funds to keep benefits moving, but noted that states cannot routinely replace federal dollars. His administration said families that rely on medical equipment requiring electricity are particularly vulnerable.

The District of Columbia has already mapped out its FY26 LIHEAP structure in documents filed with the federal government. The District’s plan shows that heating assistance, cooling assistance, weatherization, and year-round crisis assistance operate from October 1 through September 30. The District allocates 50 percent of its LIHEAP funds to heating assistance, 10 percent to cooling, 13 percent to year-round crisis assistance, 15 percent to weatherization, and 10 percent to administrative costs. Two percent is used for services that help residents reduce energy needs, including education on reading utility bills and identifying energy waste.

The District’s plan lists a minimum LIHEAP benefit of $200 and a maximum of $1,800 for both heating and cooling assistance. Crisis benefits are provided separately and may reach up to $500 when needed to resolve an emergency. The plan states that a household is considered in crisis if it has been disconnected from energy service, if heating oil is at 5 percent or less of capacity, or if the household has at least $200 owed after the regular benefit is applied.

The District’s filing notes that LIHEAP staff conduct outreach through community meetings, senior housing sites, Advisory Neighborhood Commissions, social media, posters, and mass mailings. The plan confirms that LIHEAP applicants can apply in person, by mail, by email, or through a mobile-friendly online application and that physically disabled residents may request in-home visits.

As agencies nationwide begin distributing the newly released funds, states continue working through large volumes of applications. Wolfe said LIHEAP administrators “have been notified that the award letters have gone out and the states can begin to draw down the funds.”

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Seven Steps to Help Your Child Build Meaningful Connections

BLACKPRESSUSA NEWSWIRE — Swinging side by side with a friend on the playground. Sharing chalk over bright, colorful sidewalk drawings. Hiding behind a tree during a spirited game of hide-and-seek. These simple moments between children may seem small, but they matter more than we think

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By Niyoka McCoy, Ed.D., Chief Learning Officer, Stride/K12

Swinging side by side with a friend on the playground. Sharing chalk over bright, colorful sidewalk drawings. Hiding behind a tree during a spirited game of hide-and-seek. These simple moments between children may seem small, but they matter more than we think: They lay the foundation for some of life’s most important skills.

Through everyday play, young children begin learning essential social and emotional skills like sharing, resolving conflicts, showing empathy, and managing their emotions. These social skills help shape emotional growth and set kids up for long-term success. Socialization in early childhood isn’t just a “nice-to-have”—it’s essential for development.

Yet today, many young children who haven’t yet started school aren’t getting enough consistent, meaningful interaction with peers. Research shows that there’s a decline in active free play and peer socialization when compared to previous generations.

There are many reasons for this. Children who are home with a parent during the day may spend most of their time with adults, limiting opportunities for peer play. Those in daycare or preschool may have restricted free play, and large classrooms can reduce supervision and social coaching. Some children live in rural areas, are homebound due to illness, have full schedules, or rely on screens to fill their playtime. And for some families, finding other families with young children to connect with isn’t easy.

While these challenges can feel significant, opportunities for connection still exist in every community. Families can take simple steps to help children build friendships, create a sense of belonging, and strengthen social skills. Here are some ideas to get started:

  • Storytime sessions at libraries or local bookstores
  • Community offerings such as parent-child workshops, art, music, gymnastics, swimming, or sports programs
  • Weekly events at children’s museums, which may include art projects, music workshops, or science experiments
  • Outdoor exploration, where kids can play with peers
  • Local parenting groups that organize playdates and group activities
  • Volunteer opportunities where children can participate, such as pet adoption events or packing meals at a food bank
  • Classes for kids at local businesses, including hardware, grocery, or craft stores

Some of these community activities are free or low-cost and give kids the chance to build friendships and practice social skills. Parents can also model positive social behavior by interacting with other parents and encouraging their children to play with their peers.

These may seem like small moments of connection, but they can have a powerful impact. Every time your child shares a toy, plays make-believe with peers, or races a friend down the slide, they’re not just playing—they’re learning the skills that build confidence, empathy, and lasting friendships. And it’s good for you, too. Creating intentional opportunities for play also helps you strengthen your own network of parents who can support one another as your children grow together.

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#NNPA BlackPress

Seven Steps to Help Your Child Build Meaningful Connections

BLACKPRESSUSA NEWSWIRE — Swinging side by side with a friend on the playground. Sharing chalk over bright, colorful sidewalk drawings. Hiding behind a tree during a spirited game of hide-and-seek. These simple moments between children may seem small, but they matter more than we think

Published

on

By Niyoka McCoy, Ed.D., Chief Learning Officer, Stride/K12

Swinging side by side with a friend on the playground. Sharing chalk over bright, colorful sidewalk drawings. Hiding behind a tree during a spirited game of hide-and-seek. These simple moments between children may seem small, but they matter more than we think: They lay the foundation for some of life’s most important skills.

Through everyday play, young children begin learning essential social and emotional skills like sharing, resolving conflicts, showing empathy, and managing their emotions. These social skills help shape emotional growth and set kids up for long-term success. Socialization in early childhood isn’t just a “nice-to-have”—it’s essential for development.

Yet today, many young children who haven’t yet started school aren’t getting enough consistent, meaningful interaction with peers. Research shows that there’s a decline in active free play and peer socialization when compared to previous generations.

There are many reasons for this. Children who are home with a parent during the day may spend most of their time with adults, limiting opportunities for peer play. Those in daycare or preschool may have restricted free play, and large classrooms can reduce supervision and social coaching. Some children live in rural areas, are homebound due to illness, have full schedules, or rely on screens to fill their playtime. And for some families, finding other families with young children to connect with isn’t easy.

While these challenges can feel significant, opportunities for connection still exist in every community. Families can take simple steps to help children build friendships, create a sense of belonging, and strengthen social skills. Here are some ideas to get started:

  • Storytime sessions at libraries or local bookstores
  • Community offerings such as parent-child workshops, art, music, gymnastics, swimming, or sports programs
  • Weekly events at children’s museums, which may include art projects, music workshops, or science experiments
  • Outdoor exploration, where kids can play with peers
  • Local parenting groups that organize playdates and group activities
  • Volunteer opportunities where children can participate, such as pet adoption events or packing meals at a food bank
  • Classes for kids at local businesses, including hardware, grocery, or craft stores

Some of these community activities are free or low-cost and give kids the chance to build friendships and practice social skills. Parents can also model positive social behavior by interacting with other parents and encouraging their children to play with their peers.

These may seem like small moments of connection, but they can have a powerful impact. Every time your child shares a toy, plays make-believe with peers, or races a friend down the slide, they’re not just playing—they’re learning the skills that build confidence, empathy, and lasting friendships. And it’s good for you, too. Creating intentional opportunities for play also helps you strengthen your own network of parents who can support one another as your children grow together.

Continue Reading

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