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Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs

By Je’Don Holloway-Talley The Birmingham Times It all started with a bow, said Taneka Gillard, founder of the iReign Special Needs Support Group Alabama. Her daughter, Reign, was born two months premature and spent months in the neonatal intensive care unit (NICU) in 2009 at St. Vincent’s Ascension Hospital in downtown Birmingham. To pass the […]
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Taneka Gillard, founder, iReign Special Needs Support Group Alabama, with daughter, Reign. (Amarr Croskey, For The Birmingham Times)

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By Je’Don Holloway-Talley
The Birmingham Times

It all started with a bow, said Taneka Gillard, founder of the iReign Special Needs Support Group Alabama. Her daughter, Reign, was born two months premature and spent months in the neonatal intensive care unit (NICU) in 2009 at St. Vincent’s Ascension Hospital in downtown Birmingham. To pass the time while her daughter was in the NICU, Gillard began to knit.

“I wanted to make her something special that she could wear while she was in the incubator, so I made her a bow,” Gillard said.

Reign was diagnosed with several conditions, and “she will never walk, or talk, or make any of the milestones that [typical children] do within the first days and years of their lives,” said Gillard. “As a parent, all the dreams you had for [your child change].”

While sitting with her daughter, Gillard said, “One bow turned into two”—and soon she’d created a variety of bows and knitted accessories in different colors to represent various conditions and disabilities in advocacy of special needs babies and children.

“Nurses and other mothers in the NICU would notice the bows in Reign’s hair and would ask me to make one for them or make them some booties,” Gillard said. “When Reign was about 3 years old, [in 2012], I started Reignbows, [an online accessory boutique].”

Starting the brand was not easy for Gillard, 50, a Long Island, New York, native, who said she often felt alone, under-resourced, ill-informed, and overlooked throughout the journey she and Reign, now 14, shared.

Click to view slideshow.

Becoming a Resource

Gillard not only created the bows but also established the iReign Special Needs Support Group Alabama, a Facebook-based advocacy and support group designed to be an interactive community for parents and caretakers of children with special needs.

“I’m trying to grow the group,” Gillard said of the online community that was founded this past spring. “I’m trying to spread the word to other parents because this group is for them. It was created by a parent for parents, and our motto is ‘We get you because we are you.’”

She added that iReign is a private Facebook group. “It’s not an open group because I’m trying to build an online community that is a safe space where caretakers can feel comfortable sharing their struggles, engaging, and being honest about their journeys. It’s a lifelong journey because many of our children’s diagnoses are chronic and will [span their lifetimes].”

Gillard created the group because she realized that it was difficult to find information pertaining to services for children with special needs.

“iReign is the group that gets information to the people,” she said. “We [provide] education on different disabilities from week to week. We look at and discuss different topics, different wins, and different struggles that parents and caretakers go through. The group is supporting families, giving them education, and, of course, advocating and teaching them how to advocate for themselves and their child’s needs.”

The group also gives parents and caretakers the opportunity to learn from one another.

“I learned early that I had to find resources for myself. I had to make the calls and do the research myself over the years, and it was overwhelming,” Gillard said. “[iReign allows] parents to learn from each other. One parent told me I could get doctors’ orders, [a sort of prescription], for diapers after Reign reached a certain age. Another neighbor told me about the Embrace Watch, [a U.S. Food and Drug Administration-cleared smartwatch that can be worn as a seizure alert system to detect some types of seizure and send an alert signal to caregivers]. … That’s why I started the iReign Special Needs Support Group Alabama—we need each other’s support.”

Being an Alabama-focused support group is intentional, the founder said: “When you talk about resources, you have to be specific to your state. When a group is generalized [in regard to location or demographics] you can’t just throw in a question because everybody lives in different states, so everybody’s going to have a different answer.”

Family Struggles

The name and phrase “iReign” represent strength and triumph, said Gillard, who also has two adult sons, ages 18 and 28. “Special needs children have a lot of struggles, but families as a whole struggle,” she said. “There are hurdles you have to jump over, and you have to reign over those obstacles by any means necessary.”

“[Reign] has a lot of disabilities and conditions,” Gillard said of her daughter, who has “quadriplegia, a form of paralysis that affects all four limbs, plus the torso. Her conditions also have included Dandy-Walker syndrome, (more here Dandy-Walker Alliance); hydrocephalus, (more here Hydrocephalus Association); cerebral palsy, (more here Cerebral Palsy Foundation); and epilepsy (more here Epilepsy Foundation).

“We have multiple diagnoses, and we can’t focus on one, and that’s part of what iReign is for,” said Gillard. “We’re telling parents, ‘Hey, we get it. We know [you can’t put a] basic blanket over all the conditions.’ There are more conditions and disabilities than cerebral palsy, epilepsy, Down syndrome, and autism. There are so many other conditions that are overlooked, and we don’t want to overlook any condition because they’re all important. That’s why we look at both the intellectual disability and the physical disability when we talk about children with disabilities or special needs.”

Gillard, a Pinson, Alabama, resident, who is also a twin, decided she would name her daughter Reign while she was pregnant.

“She was my first girl, and I already had two boys. I would say, ‘Reign and I are going to reign all over this house,’” Gillard said with a laugh. “I had all the dreams a mother has for herself and her baby girl. I knew she would be strong, and I knew she would take life by the horns, so I decided on Reign for her name.”

Despite the challenges, Gillard said Reign’s strength is exemplary, and she has triumphed over every surgery and obstacle they’ve faced. Still, those initial diagnoses, surgeries, and long hospital stays can be daunting.

“You go from living your everyday life to having to make sacrifice after sacrifice to take care of your child,” the mom said. “I had to sacrifice my job [as a licensed practical nurse (LPN) working as a school nurse], and I had to sacrifice school when I was going for my registered nurse degree. … I think that’s what pushed me to go back to school [in 2017] and major in psychology. … All of the stress takes a toll on you mentally, and I wanted to learn how to cope with it and help others.”

Becoming a Specialist

Gillard earned a Bachelor of Science degree in psychology in 2018 from the University of Alabama at Birmingham (UAB). She also attended American Public University online, where she obtained a child life specialist certification in 2020 in which she is clinically trained in the developmental impact of illness and injury.

“I went back to school to get my psychology degree and child life specialist certification because I want to help families and give them resources,” said Gillard, adding that spending time in hospitals helped her understand the importance of child life specialists.

“It’s the psychology of dealing with the family dynamics of special needs children or special treatments, children with cancer, or any health issue that going to have them in a hospital long term … to try to make their life in the hospital as close to at home or normal as possible,” she said.

Having been a rehabilitation nurse (a professional who assists individuals with a disability and/or chronic illness to help them attain and maintain maximum function prior to her daughter’s birth gave Gillard the skills she would need to administer home care to Reign.

“When I go to see the doctors and all the specialists, I like for them to give it to me straight, don’t sugarcoat anything, give it to me raw, and let me take it in and process it the way it needs to be processed,” she said. “I always tell people that God prepared me for my daughter and prepared me in my career, as well.”

Gillard wrote a book titled “iReign” just after her daughter was born: “[It is] about my struggles, what I’ve seen in other families, how I’ve seen it affect the family dynamic if you don’t have a support system, how it affects you [as an individual], and how it just changes your whole life.”

Gillard is also a licensed cosmetologist. “Doing hair really got me through a lot because I’m creative, and it gives me an outlet. When I had to give up my job and quit school, my hair career is what took me through, and it still gets me through a lot,” she said, adding that doing hair remains her side hustle.

“During the summer and breaks from school, I’m not able to work full-time because I don’t have in-home nurses and [Reign] is not in school, but I can always take her to the shop with me,” she added.

In addition, Gillard still runs the Reignbows online accessories boutique, which has been in existence for more than a decade. Through her brand, she advocates for and gives back to the special needs community, both of which are among her priorities.

“On the Reignbows side, it’s the same thing [we do through the iReign Special Needs Support Group Alabama Facebook community]—we’re educating and advocating—but it’s more of a sales platform,” Gillard said. “We always donate back to the community from the sales we make from Reignbows, whether it’s to a school, hospital, or any type of organization that’s local within Birmingham. … We’ve also donated to other states in the past, it’s just wherever the need is.”

To join the iReign Special Needs Support Group Alabama Facebook community, visit https://www.facebook.com/groups/specialneedssupportgroupalabama. To shop at the Reignbows online boutique, visit http://www.shopreignbowsonline.com, and follow Reignbows on Facebook and Instagram @reignbows. To get more information about both iReign and Reignbows, join the mailing list at http://www.shopreignbowsonline.com.

 

This article originally appeared in The Birmingham Times.

The post Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs first appeared on BlackPressUSA.

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COMMENTARY: Women of Color Shape Our Past and Future

MINNESOTA SPOKESMAN RECORDER — Every March, Women’s History Month invites us to pause and honor the women whose courage, intellect, and leadership have shaped our world. This year, that invitation feels especially urgent. We are living in a time when history is being rewritten, when DEI is being recast as a threat, and when the stories we choose to uplift matter more than ever. The stories of women of color must be centered, celebrated, and carried forward with intention.

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Women of Color Leadership Shapes the Legacy of Women’s History Month

By Dr. Sharon M. Holder | Minnesota Spokesman Recorder

Women’s History Month offers an opportunity to recognize the enduring impact of women of color leadership across history and in the present day. From Harriet Tubman and Shirley Chisholm to today’s leaders in science, politics and culture, women of color continue to shape movements, institutions and communities through courage, collaboration and vision.

Every March, Women’s History Month invites us to pause and honor the women whose courage, intellect, and leadership have shaped our world. This year, that invitation feels especially urgent. We are living in a time when history is being rewritten, when DEI is being recast as a threat, and when the stories we choose to uplift matter more than ever. The stories of women of color must be centered, celebrated, and carried forward with intention.

For centuries, women of color have been architects of progress, even when history tried to confine them to the margins. They have led movements, built institutions, transformed culture, and expanded the boundaries of justice, leadership, and community. Their contributions are not postscripts; they are landmarks. Yet too often, their brilliance has been acknowledged only in hindsight. Women’s History Month offers a chance to correct that imbalance, not only by remembering the past, but by recognizing their leadership unfolding before us.

This legacy lives in Harriet Tubman, whose courage and strategic brilliance transformed the Underground Railroad into one of the boldest freedom operations in American history. In Barbara Jordan, whose moral clarity reshaped the nation’s understanding of justice and constitutional responsibility. In Madam C. J. Walker, expanding both the beauty industry and the economic horizons of Black women. It dances in Josephine Baker, who challenged racism and resisted fascism. In Ida B. Wells and Dolores Huerta, who wielded truth and determination in pursuit of justice. In Chien-Shiung Wu, whose experiments altered science, and Shirley Chisholm, whose political courage expanded the very definition of leadership. These women did more than break barriers; they built new worlds.

A powerful throughline in the leadership of women of color is how they lead: collaboratively, creatively, relationally, and with deep responsibility to community. Their leadership is grounded not in hierarchy but in connection, in the belief that progress is something we build together.

We see this in Kamala Harris, whose presence expands the boundaries of possibility; in Ketanji Brown Jackson; in Oprah Winfrey; and in Toni Morrison, who insisted that the interior lives of Black women are essential to the human story. It resonates in Simone Biles and Serena Williams, redefining strength through excellence and self-belief.

Today, women of color continue to drive breakthroughs in medicine, technology, the arts, politics, and environmental justice. Their leadership appears not only in boardrooms or public office, but in mentorship, advocacy, and the daily navigation of systems never designed for them. The spirit shines in Mae Jemison and Ellen Ochoa; in Michelle Obama; and in the brilliance of Katherine Johnson, Dorothy Vaughan, Mary Jackson, and Christine Darden, whose work helped launch a nation into space.

Celebration is important, but it is not enough. Honoring women of color requires intentional action rooted in equity. It means creating environments where their voices are valued, challenging the biases that shape who is recognized, and ensuring progress is shared.

As we celebrate Women’s History Month, let us honor women of color not as symbols, but as leaders whose work continues to guide us. When we uplift women of color, we honor history and shape the future.

Dr. Sharon M. Holder lives in South Carolina. She holds a PhD/MPhil in Gerontology from the Center for Research on Aging at the University of Southampton, UK; a Master of Science in Gerontology from the Institute of Gerontology at King’s College London, UK; and a Master of Social Work from the Graduate College of Social Work at the University of Houston, Texas.

Dr. Holder discovered her love of poetry at the University of Houston–Downtown, where she published in The Bayou Review and the Anthology of Poetry. Today, she writes poetry as a practice of gratitude alongside her academic research.

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Woman’s Search for Family’s Roots Leads to Ancestor John T. Ward – A Successful Entrepreneur and Conductor on the Underground Railroad

THE AFRO — For years, she wanted to know more about her ancestor John T. Ward, she said, and her curiosity eventually became an obsession, leading her to become the genealogist for her family. And so, for more than a decade, she set out to trace her family’s roots and discovered a story that would change her life and the way she viewed American history. 

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By D. Kevin McNeir | Special to The AFRO 

Shanna Ward, the owner of a publishing company and insurance agency located in Columbus, Ohio, said the elders in her family often say she inherited her entrepreneurial spirit from one of their ancestors – a formerly enslaved child from Virginia whose freedom came through manumission in 1827.

For years, she wanted to know more about her ancestor John T. Ward, she said, and her curiosity eventually became an obsession, leading her to become the genealogist for her family. And so, for more than a decade, she set out to trace her family’s roots and discovered a story that would change her life and the way she viewed American history.

John T. Ward would help others secure their freedom and justice in his roles as a conductor on the Underground Railroad, an abolitionist, and political activist. But realizing that economic freedom was essential to his and his family’s survival, he and his son founded the Ward Transfer Line in 1881 (now E.E. Ward Moving) – one of America’s oldest Black-owned businesses. While it has transferred ownership, the business remains in operation today.

Shanna Ward recently published a book about her ancestor, “The Bequest of John T. Ward,” which she hopes can be added to other unheralded tales of Black resistance that occurred during America’s antebellum period.

“Originally, I just wanted to write a 100-page story when I first began digging and was encouraged after I found a copy of a will dated 1827 which included him and was a rare example of a mass manumission,” Shanna Ward said. “Three of the slaves, including John’s grandfather, were given about 294 acres of land in the will, but all the former slaves were supposed to remain on the plantation until their 21st birthday. Some refused to remain. That’s how our family got to Ohio.”

Ward said she learned that newly freed Blacks, including her ancestors in Ohio, had to fend for themselves and often did so with amazing results given the obstacles they faced.

“In those days there were no civil rights organizations, and in local communities, Blacks formed and supported Black-owned businesses, took their own census recordings, and became involved in local politics – all without White involvement,” she said.

BOOK COVER: The cover of the book “The Bequest of John T. Ward,” written by Shanna Ward about her ancestor who, as a child, was granted his freedom in 1827 and went on to become a successful business owner in Ohio, a political activist, and a conductor on the historic Underground Railroad.

BOOK COVER: The cover of the book “The Bequest of John T. Ward,” written by Shanna Ward about her ancestor who, as a child, was granted his freedom in 1827 and went on to become a successful business owner in Ohio, a political activist, and a conductor on the historic Underground Railroad.

“There is part of Ohio where, during the days of slavery, if you successfully crossed the river you were free,” she said. “That was where Black life began – across the river in freedom. When we understand ourselves as more than property and uncover tales of survival which are the foundation of our legacy, then we can better understand who we are and what our ancestors endured. We are stronger than we are often led to believe.”

Efforts among African Americans to learn their family roots have increased over the past several decades, particularly given the success of the PBS documentary, “Finding Your Roots,” hosted and narrated by Harvard University professor Dr. Henry Louis Gates Jr.

On the show’s website, Gates said he developed the show in 2012 in efforts to continue his quest to “get into the DNA of American culture.”

In each episode, celebrities view ancestral histories and share their emotional experience with viewers. Gates attributes the success of the show to a significant surge in interest among Black Americans in tracing their family roots and a desire to reconnect with ancestral history that was severed by slavery.

JOHN T. WARD: John T. Ward, the historic patriarch in a family whose roots can be traced to the days of slavery in Virginia, is the subject of a new book written by a member of his proud family, Shanna Ward, called “The Bequest of John T. Ward.”

JOHN T. WARD: John T. Ward, the historic patriarch in a family whose roots can be traced to the days of slavery in Virginia, is the subject of a new book written by a member of his proud family, Shanna Ward, called “The Bequest of John T. Ward.”

“Advancements in DNA testing have increased accessibility of records and led to a cultural push to reclaim identity beyond the ‘brick wall’ of 1870,” said Gates who noted that the 1870 U.S. Census represents the first time former slaves were listed by name and, unfortunately, serves as the point where records of their lives often stop and cannot be traced any earlier.

In a recent paper published in the journal “American Anthropologist,” University of Illinois Urbana-Champaign anthropology professor LaKisha David posits that by using genetic genealogy, African Americans now have the real possibility of restoring family narratives that were disrupted, severed and destroyed by institutional slavery.

“For African Americans who have grown up with a sense of ancestral loss and disconnection, this reclamation of family history is deeply humanizing and healing,” she writes. “It replaces the genealogical unknown with tangible knowledge of ancestral histories and kinship ties.

“Identifying African ancestors and living relatives is an act of restorative justice. It is ultimately about (re)claiming the humanity, dignity, and agency of enslaved Africans and their descendants, which is an essential component of repairing the harms of slavery.”

Ward said by uncovering her family’s truth, she has established a platform for education and empowerment for herself, her children, and today’s youth.

“I realized how important it is to pass down our own stories to the next generation,” Ward said. “There’s so much our children need to know about the Underground Railroad, the quilt codes created by Black women, and other examples of unrecorded heroics and bravery exhibited by Black men and women. Their collective efforts led to the end of Jim Crow laws and the securing of equal rights in the U.S. Constitution for African Americans. If you look hard enough, I believe everyone has someone like Harriet Tubman or Frederick Douglass in their family.”

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Advocates Raise Alarm Over ICE Operation, MOU and Detention Risks in Baltimore County

THE AFRO — “This is highly problematic given many of the charges that land people in county correctional facilities to begin with are for misdemeanors of which they may not even ultimately be proven guilty and convicted,” said Cathryn Ann Paul Jackson, public policy director for We Are CASA. “It results in a subversion of the local criminal justice system as a means to further racial profiling and do ICE’s dirty work.”

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By Megan Sayles | AFRO Staff Writer
msayles@afro.com

As U.S. Immigration Customs and Enforcement (ICE) operations intensify nationwide, community organizations have become the eyes and ears of their neighborhoods—monitoring the agency’s presence and alerting residents to protect themselves and their neighbors.

In Baltimore County, nonprofits like We Are CASA have observed a spectrum of enforcement actions.

“We have seen a range of activity, including traffic stops and ICE showing up in neighborhoods or in seeming response to tips,” said Cathryn Ann Paul Jackson, public policy director for We Are CASA. “Beyond actual ICE activity in Baltimore County, we have seen many detentions of Baltimore County residents across the DMV, as community members tend to travel across counties and cities for work.”

We Are CASA, a national nonprofit headquartered in Maryland, is dedicated to empowering and improving the quality of life for working-class Black, Latino, Afro-descendent, Indigenous and immigrant communities. Jackson’s personal connection to this mission led her to the organization. A daughter of immigrants from Guyana and Trinidad, she said she grew up witnessing firsthand how immigration policy can define families’ safety, opportunity and sense of belonging.

She said the locations and times of ICE operations in Baltimore County have varied over time.

“We have consistently seen ICE arrest people at their check-in appointments, which were ironically created as an alternative to detention and are now being abused to trap people into custody,” said Jackson. “For a period of time, we were witnessing a significant amount of arrests along the Baltimore-Washington Parkway by U.S. Park Police, who were using a previously rarely enforced law against driving commercial vehicles on this road as a pretext to profile immigrant drivers, detain them and hand them over to ICE.”

Last fall, Baltimore County entered into a Memorandum of Understanding (MOU) with ICE, removing the locality from the Department of Justice’s (DOJ) sanctuary jurisdictions list and formalizing a policy for notifying ICE before the release of inmates with federal immigration detainers or judge-signed warrants.

The agreement codified an existing practice within the Baltimore County Department of Corrections. The MOU is not a 287(g) agreement, which is a partnership between local law enforcement and ICE to delegate immigration enforcement authority to police officers. Those agreements were banned by the state of Maryland on Feb. 17.

However, Jackson criticized the policy memorialized in the MOU, saying that although it is carefully drafted to avoid legal violations, it effectively allows detention centers to hold people past their court-ordered release so that ICE can take them into custody.

“This is highly problematic given many of the charges that land people in county correctional facilities to begin with are for misdemeanors of which they may not even ultimately be proven guilty and convicted,” said Jackson. “It results in a subversion of the local criminal justice system as a means to further racial profiling and do ICE’s dirty work.”

Baltimore County has said it entered into the MOU in an effort to preserve its access to federal funding. The locality explained its reasoning on a FAQ page about its removal from the DOJ’s sanctuary jurisdictions list.

“Inclusion on DOJ’s list could risk significant federal funding, on which the county and constituents depend,” the entry read. “Signing the MOU ensures that the county avoids risks to federal funding that is used to provide needed services.”

Baltimore County’s removal is not unique, as neither Maryland nor any of its counties appear on the DOJ’s list. Still, community members worry that the county’s MOU with ICE could lead to wrongful detentions and the misidentification of residents.

Immigration detainers are not always confirmation of a person’s immigration status—or lack thereof. They are requests by ICE that can be issued without a judicial determination and do not, on their own, establish a person’s legal status.

“We’re very concerned about errors occurring here in the county because of the amped up nature of this mass deportation push,” said Patterson. “This is a replacement theory-driven immigration policy. That means that at the same time we are importing White South African Afrikaaners—who at one time essentially colonized South Africa and oppressed Black South Africans—we are fast deporting people of color. All of us who are the minority can be mistaken for ‘unlawful immigrants.’”

The recent escalation in Minneapolis has heightened Patterson’s concern. He said the city has effectively been made a battleground.

Patterson said the Baltimore County NAACP wants the public to recognize that ICE operates as a militarized organization, unlike local police. He urged people to consider avoiding areas where ICE is active whenever possible and to exercise caution if they encounter agents. If approached, Patterson stressed that people verify warrants are properly signed and directed at them, assert their right to remain silent and contact an attorney before answering questions or consenting to searches.

He also encouraged residents to notify the Baltimore County NAACP of any encounters with ICE.

“We don’t want to wait for Minnesota in Maryland before speaking out about this,” said Patterson. “We want to equip our people to protect themselves behaviorally, consciously and conscientiously because these things are coming to pass. The imprint is among us and we need, therefore, to be aware.”

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