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UAB Looks to Retain Participants in All of Us Research Program

BIRMINGHAM TIMES — Recruiting participants to a research program is one thing. Keeping those participants engaged over time is another. Investigators at the University of Alabama at Birmingham (UAB), which heads the Southern Network of the National Institutes of Health’s All of Us Research Program, will launch a new pilot study aimed at increasing participant retention rates in All of Us in the state of Alabama.

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By Bob Shepard

Recruiting participants to a research program is one thing. Keeping those participants engaged over time is another. Investigators at the University of Alabama at Birmingham (UAB), which heads the Southern Network of the National Institutes of Health’s All of Us Research Program, will launch a new pilot study aimed at increasing participant retention rates in All of Us in the state of Alabama.

All of Us is a national program to accelerate health research and medical breakthroughs, enabling individualized prevention, treatment and care for all of us. The overall aim nationally is to enroll 1 million or more volunteers who will provide information over time for use in a wide range of health research studies. The program will oversample communities that have been underrepresented in biomedical research to make the program’s dataset the largest, most diverse resource of its kind.

Launched in May 2018, All of Us has enrolled more than 270,000 participants nationwide. The Southern Network, consisting of Alabama, Mississippi and Louisiana, has enrolled more than 17,700.

UAB investigators, funded by an additional $7 million funding award from NIH, will conduct a pilot study to discover better ways to engage and retain those enrollees. UAB will share lessons learned from this pilot with other All of Us partners to support retention efforts nationwide, particularly with other rural and hard-to-reach communities.

“Retaining research participants over the course of a multiple-year study can be difficult, especially in a large, multifaceted program such as All of Us,” said Bruce R. Korf, M.D., Ph.D., UAB chief genomics officer and co-principal investigator for the All of Us Southern Network. “The goal of this pilot study will be to assess retention models even as we continue enrollment efforts throughout the three-state Southern Network.”

The pilot will employ a retention navigator model, using specially trained navigators to interact directly with participants. Navigators will be recruited locally in areas where access to UAB or the other study sites is a barrier to recruitment and retention.

“Individuals may be more likely to remain involved in the program if they can relate to trusted ‘retention navigators,’ who can help them to understand and interact with All of Us and overcome barriers such as lack of internet or email access or fear of research studies,” said Mona Fouad, M.D., director of the UAB Minority Health and Health Disparities Research Center.

Reaching Remote Areas

The program will be utilizing a mobile clinical unit to reach remote areas, eliminating the need for participants to travel to UAB or one of the other study sites. The investigators will also assess the efficacy of traditional and new digital retention strategies.

“Use of enhanced digital and traditional retention techniques can improve participant engagement and increase the likelihood of follow-up by creating stronger and more frequent connections to the program,” said Cora E. Lewis, M.D., chair of the Department of Epidemiology in the School of Public Health and co-PI of the Southern Network.

The pilot will identify and engage health care providers, community leaders and community organizations in the target areas to assist in the identification and recruitment of navigators, and then recruit retention navigators in those targeted areas. Investigators hope to increase study retention by assisting participants in completing follow-up surveys online through the All of Us participant portal.

“Recruitment and retention of participants in clinical research is the key to finding the answers that can be transformative for the overall health of our state and region,” said Selwyn Vickers, M.D., senior vice president and dean of the UAB School of Medicine. “I applaud the leadership and staff of the Southern Network for their outstanding efforts thus far. I am confident that they will discover and fine-tune new strategies for keeping those who selflessly give of themselves to participate in All of Us active and engaged over the course of the research project.”

Alabamians age 19 or older, regardless of health status, are eligible to enroll in the program by visiting JoinAllofUs.org/UAB.

The All of Us Southern Network includes the University of Alabama at Birmingham, Cooper Green Mercy Health Services, Huntsville Hospital, Louisiana State University Health Sciences Center, Tulane University, Tuskegee University, UAB School of Medicine’s Montgomery Internal Medicine and Selma Family Medicine programs, UAB School of Medicine’s Huntsville Regional Medical Campus, University of Mississippi Medical Center, University of South Alabama Health System, and University Medical Center in Tuscaloosa.

This article originally appeared in The Birmingham Times.

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#NNPA BlackPress

Chavis and Bryant Lead Charge as Target Boycott Grows

BLACKPRESSUSA NEWSWIRE — Surrounded by civil rights leaders, economists, educators, and activists, Bryant declared the Black community’s power to hold corporations accountable for broken promises.

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By Stacy M. Brown
BlackPressUSA.com Senior National Correspondent

Calling for continued economic action and community solidarity, Dr. Jamal H. Bryant launched the second phase of the national boycott against retail giant Target this week at New Birth Missionary Baptist Church in Atlanta. Surrounded by civil rights leaders, economists, educators, and activists, Bryant declared the Black community’s power to hold corporations accountable for broken promises. “They said they were going to invest in Black communities. They said it — not us,” Bryant told the packed sanctuary. “Now they want to break those promises quietly. That ends tonight.” The town hall marked the conclusion of Bryant’s 40-day “Target fast,” initiated on March 3 after Target pulled back its Diversity, Equity, and Inclusion (DEI) commitments. Among those was a public pledge to spend $2 billion with Black-owned businesses by 2025—a pledge Bryant said was made voluntarily in the wake of George Floyd’s murder in 2020.“No company would dare do to the Jewish or Asian communities what they’ve done to us,” Bryant said. “They think they can get away with it. But not this time.”

The evening featured voices from national movements, including civil rights icon and National Newspaper Publishers Association (NNPA) President & CEO Dr. Benjamin F. Chavis Jr., who reinforced the need for sustained consciousness and collective media engagement. The NNPA is the trade association of the 250 African American newspapers and media companies known as The Black Press of America. “On the front page of all of our papers this week will be the announcement that the boycott continues all over the United States,” said Chavis. “I would hope that everyone would subscribe to a Black newspaper, a Black-owned newspaper, subscribe to an economic development program — because the consciousness that we need has to be constantly fed.” Chavis warned against the bombardment of negativity and urged the community to stay engaged beyond single events. “You can come to an event and get that consciousness and then lose it tomorrow,” he said. “We’re bombarded with all of the disgust and hopelessness. But I believe that starting tonight, going forward, we should be more conscious about how we help one another.”

He added, “We can attain and gain a lot more ground even during this period if we turn to each other rather than turning on each other.” Other speakers included Tamika Mallory, Dr. David Johns, Dr. Rashad Richey, educator Dr. Karri Bryant, and U.S. Black Chambers President Ron Busby. Each speaker echoed Bryant’s demand that economic protests be paired with reinvestment in Black businesses and communities. “We are the moral consciousness of this country,” Bryant said. “When we move, the whole nation moves.” Sixteen-year-old William Moore Jr., the youngest attendee, captured the crowd with a challenge to reach younger generations through social media and direct engagement. “If we want to grow this movement, we have to push this narrative in a way that connects,” he said.

Dr. Johns stressed reclaiming cultural identity and resisting systems designed to keep communities uninformed and divided. “We don’t need validation from corporations. We need to teach our children who they are and support each other with love,” he said. Busby directed attendees to platforms like ByBlack.us, a digital directory of over 150,000 Black-owned businesses, encouraging them to shift their dollars from corporations like Target to Black enterprises. Bryant closed by urging the audience to register at targetfast.org, which will soon be renamed to reflect the expanding boycott movement. “They played on our sympathies in 2020. But now we know better,” Bryant said. “And now, we move.”

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The Department of Education is Collecting Delinquent Student Loan Debt

BLACKPRESSUSA NEWSWIRE — the Department of Education will withhold money from tax refunds and Social Security benefits, garnish federal employee wages, and withhold federal pensions from people who have defaulted on their student loan debt.

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By April Ryan

Trump Targets Wages for Forgiven Student Debt

The Department of Education, which the Trump administration is working to abolish, will now serve as the collection agency for delinquent student loan debt for 5.3 million people who the administration says are delinquent and owe at least a year’s worth of student loan payments. “It is a liability to taxpayers,” says White House Press Secretary Karoline Leavitt at Tuesday’s White House Press briefing. She also emphasized the student loan federal government portfolio is “worth nearly $1.6 trillion.” The Trump administration says borrowers must repay their loans, and those in “default will face involuntary collections.” Next month, the Department of Education will withhold money from tax refunds and Social Security benefits, garnish federal employee wages, and withhold federal pensions from people who have defaulted on their student loan debt. Leavitt says “we can not “kick the can down the road” any longer.”

Much of this delinquent debt is said to have resulted from the grace period the Biden administration gave for student loan repayment. The grace period initially was set for 12 months but extended into three years, ending September 30, 2024. The Trump administration will begin collecting the delinquent payments starting May 5. Dr. Walter M. Kimbrough, president of Talladega College, told Black Press USA, “We can have that conversation about people paying their loans as long as we talk about the broader income inequality. Put everything on the table, put it on the table, and we can have a conversation.” Kimbrough asserts, “The big picture is that Black people have a fraction of wealth of white so you’re… already starting with a gap and then when you look at higher education, for example, no one talks about Black G.I.’s that didn’t get the G.I. Bill. A lot of people go to school and build wealth for their family…Black people have a fraction of wealth, so you already start with a wide gap.”

According to the Education Data Initiative, https://educationdata.org/average-time-to-repay-student-loans It takes the average borrower 20 years to pay their student loan debt. It also highlights how some professional graduates take over 45 years to repay student loans. A high-profile example of the timeline of student loan repayment is the former president and former First Lady Barack and Michelle Obama, who paid off their student loans by 2005 while in their 40s. On a related note, then-president Joe Biden spent much time haggling with progressives and Democratic leaders like Senators Elizabeth Warren and Chuck Schumer on Capitol Hill about whether and how student loan forgiveness would even happen.

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#NNPA BlackPress

VIDEO: The Rev. Dr. Benjamin F. Chavis, Jr. at United Nations Permanent Forum on People of African Descent

https://youtu.be/Uy_BMKVtRVQ Excellencies:       With all protocol noted and respected, I am speaking today on behalf of the Black Press of America and on behalf of the Press of People of African Descent throughout the world.  I thank the Proctor Conference that helped to ensure our presence here at the Fourth Session of the […]

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Excellencies:

      With all protocol noted and respected, I am speaking today on behalf of the Black Press of America and on behalf of the Press of People of African Descent throughout the world.  I thank the Proctor Conference that helped to ensure our presence here at the Fourth Session of the UN Permanent Forum on People of African Descent.
      The focus on AI and digital equity is urgent within the real time realities today where there continues to be what is referred to as the so called mainstream national and international media companies that systematically undergird racism and imperialism against the interests of People of African Descent.
         We therefore call on this distinguished gathering of leaders and experts to challenge member states to cite and to prevent the institutionalization of racism in all forms of media including social media, AI and any form of digital bias and algorithmic discrimination.
            We cannot trust nor entertains the notion that  former and contemporary enslavers will now use AI and digital transformation to respect our humanity and fundamental rights.
              Lastly we recommend that a priority should be given to the convening of an international collective of multimedia organizations  and digital associations that are owned and developed by Africans and People of African Descent.
Basta the crimes against our humanity!
Basta Racism!
Basta Imperialism!
A Luta Continua!
Victory is certain!
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