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Sickle Cell Consortium to Host 9th Annual Leadership Summit & General Assembly in Atlanta, Georgia

The Sickle Cell Consortium is a national organization dedicated to improving the lives of individuals with sickle cell disease through advocacy, education, and community collaboration. Over the past decade, the Consortium has transformed the landscape of sickle cell advocacy. It remains a trusted voice in the fight for better care and resources for sickle cell […]

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The Sickle Cell Consortium is a national organization dedicated to improving the lives of individuals with sickle cell disease through advocacy, education, and community collaboration. Over the past decade, the Consortium has transformed the landscape of sickle cell advocacy. It remains a trusted voice in the fight for better care and resources for sickle cell warriors.

The Sickle Cell Community Consortium will host its 9th Annual Leadership Summit & General Assembly, April 23-27, 2025, at the Atlanta Airport Marriott. This year’s theme, “Legacy of Leadership: Advancing Leadership for Impactful Change,” sets the tone for a transformative experience dedicated to elevating the voices and leadership of sickle cell patients, caregivers, and community-based organizations (CBOs).

This exclusive summit, sponsored in part by Pfizer and Vertex, continues to be the only national conference led by and for the sickle cell community. It is built on the foundation of the powerful principle: “Nothing for us, without us.” Each year, credentialed partners, including independent patient advocates (IPCAs), caregiver leaders, and grassroots CBOs, come together with researchers, industry professionals, and government leaders to create meaningful collaborations that inspire measurable change.

 

“This summit is more than a meeting—it’s a movement. It’s where grassroots leadership, lived experience, and institutional expertise come together to shape the future of sickle cell care and advocacy,” said SC3 Executive Leadership.

As part of its 10th anniversary, the ‘Consortium’ is spotlighting its most pressing initiatives, including the #WeAreTheCure project—a call to action for increasing organ and marrow donor registrations to save the lives of sickle cell warriors.

Two powerful stories underscore the urgency of this initiative: Tahirah, a young sickle cell warrior in need of a kidney donor match, and Dr. Lakeia Bailey, the Consortium’s Executive Director, actively seeking a bone marrow match. These stories highlight the life-saving potential of community support and donor registration.

Summit Highlights Include:

  • Expert advocacy and best-practice training for CBO leaders
  • Strategic policy discussions and collaborative sessions
  • The Annual Business Meeting of the General Assembly
  • Interactive workshops on funding, programming, and research partnerships
  • Major updates on SC3 projects, initiatives, and national impact

 

Unlike traditional conferences, the Leadership Summit is intentionally hands-on and solution-focused, designed to equip attendees with practical tools and resources to return to their communities. It’s a space where grassroots leaders are not just included—they are centered.

General attendees, sponsors, researchers, and non-credentialed partners must register separately for the leadership summit at https://tinyurl.com/sc3leadershipEB25

For more information, visit: https://shorturl.at/Tv3uq

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Remembering George Floyd

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OP-ED: Oregon Bill Threatens the Future of Black Owned Newspapers and Community Journalism

BLACKPRESSUSA NEWSWIRE — Nearly half of Oregon’s media outlets are now owned by national conglomerates with no lasting investment in local communities. According to an OPB analysis, Oregon has lost more than 90 news jobs (and counting) in the past five years. These were reporters, editors and photographers covering school boards, investigating corruption and telling community stories, until their jobs were cut by out-of-state corporations.

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By Dr. Benjamin F. Chavis, Jr.
President and CEO, National Newspaper Publishers Association

For decades, The Skanner newspaper in Portland, the Portland Observer, and the Portland Medium have served Portland, Oregon’s Black community and others with a vital purpose: to inform, uplift and empower. But legislation now moving through the Oregon Legislature threatens these community news institutions—and others like them.

As President and CEO of the National Newspaper Publishers Association (NNPA), which represents more than 255 Black-owned media outlets across the United States—including historic publications like The Skanner, Portland Observer, and the Portland Medium—l believe that some Oregon lawmakers would do more harm than good for local journalism and community-owned publications they are hoping to protect.

Oregon Senate Bill 686 would require large digital platforms such as Google and Meta to pay for linking to news content. The goal is to bring desperately needed support to local newsrooms. However, the approach, while well-intentioned, puts smaller, community-based publications at a future severe financial risk.

We need to ask – will these payments paid by tech companies benefit the journalists and outlets that need them most? Nearly half of Oregon’s media outlets are now owned by national conglomerates with no lasting investment in local communities. According to an OPB analysis, Oregon has lost more than 90 news jobs (and counting) in the past five years. These were reporters, editors, and photographers covering school boards, investigating corruption, and telling community stories, until their jobs were cut by out-of-state corporations.

Legislation that sends money to these national conglomerate owners—without the right safeguards to protect independent and community-based outlets—rewards the forces that caused this inequitable crisis in the first place. A just and inclusive policy must guarantee that support flows to the front lines of local journalism and not to the boardrooms of large national media corporations.

The Black Press exists to fill in the gaps left by larger newsrooms. Our reporters are trusted messengers. Our outlets serve as forums for civic engagement, accountability and cultural pride. We also increasingly rely on our digital platforms to reach our audiences, especially younger generations—where they are.

We are fervently asking Oregon lawmakers to take a step back and engage in meaningful dialogue with those most affected: community publishers, small and independent outlets and the readers we serve. The Skanner, The Portland Observer, and The Portland Medium do not have national corporate parents or large investors. And they, like many smaller, community-trusted outlets, rely on traffic from search engines and social media to boost advertising revenue, drive subscriptions, and raise awareness.

Let’s work together to build a better future for Black-owned newspapers and community journalism that is fair, local,l and representative of all Oregonians.

Dr. Benjamin F. Chavis Jr., President & CEO, National Newspaper Publishers Association

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Hate and Chaos Rise in Trump’s America

BLACKPRESSUSA NEWSWIRE — Tactics ranged from local policy manipulation to threats of violence. The SPLC documented bomb threats at 60 polling places in Georgia, traced to Russian email domains.

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By Stacy M. Brown
Black Press USA Senior National Correspondent

The Southern Poverty Law Center has identified 1,371 hate and antigovernment extremist groups operating across the United States in 2024. In its latest Year in Hate & Extremism report, the SPLC reveals how these groups are embedding themselves in politics and policymaking while targeting marginalized communities through intimidation, disinformation, and violence. “Extremists at all levels of government are using cruelty, chaos, and constant attacks on communities and our democracy to make us feel powerless,” said SPLC President Margaret Huang. The report outlines how hard-right groups aggressively targeted diversity, equity, and inclusion (DEI) initiatives throughout 2024. Figures on the far right falsely framed DEI as a threat to white Americans, with some branding it a form of “white genocide.” After the collapse of Baltimore’s Francis Scott Key Bridge, a former Utah legislator blamed the incident on DEI, posting “DEI = DIE.”

Tactics ranged from local policy manipulation to threats of violence. The SPLC documented bomb threats at 60 polling places in Georgia, traced to Russian email domains. Similar threats hit Jewish institutions and Planet Fitness locations after far-right social media accounts attacked them for trans-inclusive policies. Telegram, which SPLC describes as a hub for hate groups, helped extremists cross-recruit between neo-Nazi, QAnon, and white nationalist spaces. The platform’s lax moderation allowed groups like the Terrorgram Collective—designated terrorists by the U.S. State Department—to thrive. Militia movements were also reorganized, with 50 groups documented in 2024. Many, calling themselves “minutemen,” trained in paramilitary tactics while lobbying local governments for official recognition. These groups shared personnel and ideology with white nationalist organizations.

The manosphere continued to radicalize boys and young men. The Fresh & Fit podcast, now listed as a hate group, promoted misogyny while mocking and attacking Black women. Manosphere influencers used social media algorithms to drive youth toward male-supremacy content. Turning Point USA played a key role in pushing white nationalist rhetoric into mainstream politics. Its leader Charlie Kirk claimed native-born Americans are being replaced by immigrants, while the group advised on Project 2025 and organized Trump campaign events. “We know that these groups build their power by threatening violence, capturing political parties and government, and infesting the mainstream discourse with conspiracy theories,” said Rachel Carroll Rivas, interim director of the SPLC’s Intelligence Project. “By exposing the players, tactics, and code words of the hard right, we hope to dismantle their mythology and inspire people to fight back.”

Click here for the full report or visit http://www.splcenter.org/resources/guides/year-hate-extremism-2024.

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